C.F.S. and Hole in the heart

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Peebjay
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Date Joined Feb 2016
Total Posts : 2
   Posted 2/29/2016 9:23 PM (GMT -7)   
I've had CFS for the past 20 years. Up until recently any tests I had done all came back negative. In 2015 I was diagnosed with Neurally Mediated Hypotension and just recently, in late 2015 I was diagnosed with a large hole in the heart (PFO).

I have just had the hole closed 6 days ago. I'm writing to find out if anyone out there also has been diagnosed with a PFO and have had it closed. All the information I read regarding this procedure and what to expect from recovery is directed to migraine sufferers and stroke victims but unfortunately nothing for CFS patients.

If anyone else has had a PFO closure I just want to ask what your recovery was like and did it make any difference to your symptoms.

Jamiej
New Member


Date Joined Sep 2016
Total Posts : 2
   Posted 9/9/2016 12:11 PM (GMT -7)   
I was recently diagnosed with PFO, but have not had it closed. I was just curious how you are feeling since you've had it closed?

Peebjay
New Member


Date Joined Feb 2016
Total Posts : 2
   Posted 9/9/2016 8:28 PM (GMT -7)   
Hi Jamiej
It's been over six months now since my closure. The procedure went smoothly. Very simple really. It only took about 1/2 hour and I was awake through it. I felt nothing, so it wasn't a problem. I had no complications (I don't really think there is any). Since the procedure my CFS symptoms have lessoned over time and I feel so much better. Now I know what 'normal' feels like. I still feel I have to monitor myself and not overdo it but generally I feel, say, 75 to 80% better than before the procedure and there is a good chance I may still improve. I was retested at my 3 month check up and my hole is completely closed. After 20 years of CFS I am still a little overwhelmed by the diagnosis and my ongoing recovery and the new lease of life it has given me.
Jamiej, I wish you the same recovery. Good luck.
P.S. Just out of curiosity, what doctor are you seeing and what size hole do you have?
again, good luck.:)
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