CFIDS sufferer, ?looking for someone to chat with online

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esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/11/2016 1:49 AM (GMT 0)   
Hi, I've had Chronic Fatigue Syndrome for a long time. I'm feeling isolated and lonely and I'd like to find some people to write to or chat with on this site. I'm brand new so I don't know how everything works on this site. Can anyone help out?

kaemicha
New Member


Date Joined May 2016
Total Posts : 12
   Posted 5/12/2016 10:41 PM (GMT -7)   
Hi esme,

This is my first time on this site and I may be willing to talk. It get's kind of isolated when no one can relate.
Let me know.
Michelle

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/13/2016 11:58 AM (GMT -7)   
Hi Michelle,

Nice to hear from you. It's my first time on the site too. I understand what you mean, it's hard. I live by myself, so that makes it difficult.

I just thought it would be nice to have some on line connections who are in a similar situation to mine. We can talk about being sick or whatever else we feel like.


So, let me know what you think.

Best to you,

esme,

kaemicha
New Member


Date Joined May 2016
Total Posts : 12
   Posted 5/13/2016 1:31 PM (GMT -7)   
I think I need that right now. I don't have a lot of energy but just sharing a bit might help.

How do you want to do this? I can't stay on the computer all day..although I've tried!

Let me know.

Best to you, as well.
Michelle

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/13/2016 5:41 PM (GMT -7)   
Hi again.

I understand, I can't stay on very long either cause I get sick.

You've tried to stay online all day? That's cute. Sometimes I wish I could too.

I thought we'd send each other emails or notes when we could. And then reply when we could We can be relaxed about it and return emails when we can or when we need contact. If you have other ideas or needs please let me know. This is just to make us feel less isolated and like we have somebody out there to "talk" to about whatever.

Take care Michelle,

esme

kaemicha
New Member


Date Joined May 2016
Total Posts : 12
   Posted 5/13/2016 8:04 PM (GMT -7)   
I agree esme. I'll see if I can find how to PM you to give you my email and please know I rarely give to anyone I don't know but I think we could help on another so let me look for the PM or if you know how, such a newbie here..already got in trouble for that!, then let me know and we can start an email chat that will hopefully be beneficial to us both.

Thanks for the nice reply!!

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/14/2016 8:44 AM (GMT -7)   
Hi Michelle,

Oh good, I'm glad you want to talk, it'll be really nice for me and I hope for you too. Don't worry about giving me your email. We don't have to to that. We can keep using this site. I just check my email and when I have a notification that you've replied, I send you an email back. I'll look around and see if I can PM too. I'm new here myself. I agree that chatting would be more fun, let's see if we can get that to work. If not emails back and forth wouldn't be bad, kinda slow, but ok.

Re: the reply, I really want us both to be comfortable with this and feel safe about doing it.

Right, I'll start looking around about PM.

I hope you're having an ok day.

esme

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/14/2016 8:54 AM (GMT -7)   
Hi Michelle,

I hope you get this, we can chat by going to "Chat" on the upper right hand side on the blue bar that also has "Log Off" and "My Profile" on the right. The blue bar goes along the top of the site. You choose your chat room by illness. I pick Chronic Fatigue Syndrome and enter my user name and pass word and it gets you into the chat room. We could use email to let each other know when we want to chat, I guess like asap or between 1:00 and 2:00 or something like that, I'm not sure how we could make it work, but we'll have to play around with it a bit before we get a system down.

So now, I don't know how or if you'll get this, I hope you do, let me know. :-)

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6028
   Posted 5/14/2016 11:50 AM (GMT -7)   
Hi esme and Michelle, welcome to HealingWell. Since you're both new members here, I think it's wise to be cautious when sharing email or personal information but I know it's important to talk about health issues with others who understand.

You could start by using the 'chat' feature here. Click on the "Chat" button in the blue bar above right. It's between "Calendar" and Search". Figure out a day and time you two can meet here and chat and sign on at that time and go into the chat room for Chronic Fatigue Syndrome.

Or, in order to email with each other, you might consider setting up a free email account with Outlook (formerly Hotmail), Yahoo or Gmail using a creative username like bluedog or willow instead of your real names.

Good luck!
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/14/2016 12:59 PM (GMT -7)   
thanks Lanie,very helpful

esme

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6028
   Posted 5/14/2016 1:41 PM (GMT -7)   
You're welcome, esme! I realized after I posted that you had already mentioned Chat on here. rolleyes lol
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/14/2016 3:06 PM (GMT -7)   
not a problem...I was so glad that a moderator was actually paying attention to emails, I imagine there are lots of communications to keep track of.

esme

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6028
   Posted 5/14/2016 6:15 PM (GMT -7)   
Hi esme. Actually, these are posts, not email. Unfortunately there is no mod assigned to this forum, so many of the posts go unanswered. Other mods, like me, co check for spam or broken rules though. :-)
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

kaemicha
New Member


Date Joined May 2016
Total Posts : 12
   Posted 5/14/2016 11:56 PM (GMT -7)   
We will figure out something, esme.

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/16/2016 2:09 PM (GMT -7)   
HI Michelle, I can't tell if you got my last post or not. But, I suggested going to the Chronice Fatigue Forum last night between 7-8 pm to talk. We can set up another time if you want to.

Your choice. If I can make it I will.

Best,

Miri

kaemicha
New Member


Date Joined May 2016
Total Posts : 12
   Posted 5/16/2016 10:28 PM (GMT -7)   
esme,
I don't like being policed on here. I'm a bit of a rule breaker.
This has been an odd week and I've been a bit busy.
I need to know what coast you're on so we can try to connect.
I'm not done trying!!
I'll check in tomorrow. I'm in Oregon and it's heading towards 11pm.
Night..talk soon..

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/17/2016 1:59 PM (GMT -7)   
Hi Michelle,I just don't like giving out my email either. I tried to set up a Gmail account, but my first and last names were listed and I can't figure out how to delete them, I'm a computer dork, I know.

I think they police rude and threatening behavior. Which I can't believe would be a problem for you. I mean I don't know you but you seem perfectly nice.

I'm on the East Coast. I think just about 3 hours ahead of you And I'd really like to connect through the CFS Forum. I'm sorry I just don't have the same level of comfort that you do about using email addresses.

I hope you'll consider using the forum with me.Again, I'd love to connect with you.

Best to you Michelle,

esme

kaemicha
New Member


Date Joined May 2016
Total Posts : 12
   Posted 5/20/2016 3:42 PM (GMT -7)   
I will try that right now. Sorry! I got busy!!

kaemicha
New Member


Date Joined May 2016
Total Posts : 12
   Posted 5/20/2016 3:45 PM (GMT -7)   
I sent an email. If that doesn't work I have a forum we can go to and send private messages. Let's see if this works. If it doesn't then we'll go to plan L or whatever.

esme
New Member


Date Joined May 2016
Total Posts : 17
   Posted 5/20/2016 4:34 PM (GMT -7)   
Hi Michelle,

I checked my email but I didn't find an email from you (sad face).
Tell me about the forum and let's do that.

Best,

Miri

kaemicha
New Member


Date Joined May 2016
Total Posts : 12
   Posted 5/22/2016 11:08 PM (GMT -7)   
I don't know if this will stay up but they have PM's here.

http://www.seniorforums.com/private.php?

I'm kaemicha there, also. Whew. We will meet. I can't post here anymore. :)

Michelle

I'll try emails again, too.
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