what is this???

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Blissy10
Regular Member


Date Joined Jul 2016
Total Posts : 43
   Posted 7/7/2016 10:37 PM (GMT -7)   
I hope you don't mind an additional question...I have normal tests: ana is OK , normal c3 and c4 ok, but the Ch50 which is high (over 60) sed rate 20 and crp 5.6, I have the butterfly rash, extreme photosensitivity, break out in hives, tingling fingertips that sometimes swell, debilitating fatique (and I mean DEBILITATING, sleeping 15 to 20 hours a day for weeks in a row, and then I am OK again) and swollen glands under my jaw for the last 2 years. Does anyone know what this could be since it doesn't appear to be lupus? Very concerned and confused... Thanks, any insight would be appreciated. Dr says its just fibro, which I know I have, but I cant make sense of these ongoing swollen glands. They suspect sjorgrens but the tests have come back Ok for sjorgrens too...The exhaustion is the worse thing, and the only thing that has managed to keep my energy level up is a low dose of phentramine for weight loss. Off the phentramine, I am too weak to teach, and consider myself disabled at this point. I was diagnosed by a specialist 30 years with CFS, due to recurring mono, but my GP said that CFS is just a factor of fibro and not a separated disease....So confused!!

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 7/10/2016 7:29 PM (GMT -7)   
If you are having problems in the jaw area have you considered it could be your teeth. Some people have trouble with the mercury fillings being used. People also can have problems with root canals. If you have a lot of dental work might get it checked out with a biological dentist. They have instruments which can measure the amount of mercury you are exposed to. I had CFS myself and it was due to my teeth. I had 10 root canals and a variety of filings and it was too much for my body to handle. Once I had it taken care of I am back to normal.

Blissy10
Regular Member


Date Joined Jul 2016
Total Posts : 43
   Posted 7/10/2016 7:36 PM (GMT -7)   
I am definitely a metal mouth...I did have my hair tested for toxins in my teens, during my first bout of mono, and the levels came back OK...But I will ask my dentist about this...Thanks so much for the information!

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 7/11/2016 5:19 AM (GMT -7)   
I had my hair tested also and it came back OK. A hair test will only tell you how much mercury is in the blood in the last 3 months. It does not tell you how much mercury that is in your tissue. Mercury accumulates in the various tissues and that is what makes you sick. If you ask the dentist who put the metal in your mouth about the matter he will not know. He thinks that mercury in your mouth is safe. You have to see a dentist who understands that mercury is a toxin and has the equipment to test the amount of mercury which is being released. Understand that these chronic diseases are caused by toxins in the body. We live in a toxic world and your body will try and get rid of the toxins. Doesn't matter if it is mercury or combination of various toxins when your body has more toxins than it can deal with you get sick. We should give our bodies as much nutrition as we can because the vitamins and minerals are the means in which our bodies can deal with the toxins. The first thing to do is get on a diet of fruits and vegetables to give you the vitamins and minerals it needs. When I was really sick I tried a detoxification program which I found from a biological dentist. It involved taking large amounts of supplements to allow my body to deal with the mercury I had in my body. After I started the detox program I felt a lot better. You might google Tom McGuire who will explain it.

Post Edited (eat2bwell) : 7/11/2016 6:26:01 AM (GMT-6)


Blissy10
Regular Member


Date Joined Jul 2016
Total Posts : 43
   Posted 7/11/2016 5:33 AM (GMT -7)   
I will definitely check this out as my blood sugar has gotten really out of control lately...Thanks so much!
I have heard about mercury before, which is why I have insisted that my daughter has to have a filling on her cavities other than mercury. There are so many health hazards out there...

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 7/12/2016 1:17 AM (GMT -7)   
Blissy, to begin with, you need a Dr who knows about CFS/ME, it is not part of Fibro. Some Dr's now-a-days still have old school thinking on the illness & so you have to find one that is knowledgeable with the illness. When you call for an appointment ask right up front if they take CFS/ME patients, no need to spend the money to find out they know no more than your Dr now. Your symptoms are the same as I had when I first became ill & couldn't figure out what I had. I was dx'd by a Rheumatologist so that might be the route you could go. They are very knowledgeable about auto-immune illnesses, Fibro & CFS/ME. I did run into one that thought CFS/ME was just Fibro with added fatigue because I do have Fibro as well but I knew I had something else as well because when I talked to people with Fibro all of my symptoms didn't fit. When I was dx'd by my Rheumy I didn't believe her at first but as time went on & I kept reading the symptoms & what others had to say I finally decided I did have it. I hope you find out what you have, don't get discouraged, just keep searching for a Dr who will figure it out. Remember, 50% of Dr's graduated in the bottom 50% of their classes. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

Blissy10
Regular Member


Date Joined Jul 2016
Total Posts : 43
   Posted 7/12/2016 4:04 AM (GMT -7)   
Thank you Jewelrylady!! Yes, I have been frustrated with my GP who believes CFS is not a separate disease, but just folds into fibro. I was diagnosed with CFS by a specialist in 89, yet my GP refused to refer me on to someone who addresses CFS. I have since been told by an irate Rhuemy that the GP was violating my patient rights by doing that, and had no business arguing that CFS was not a separate disease as it has been renamed in the last 2 years, reestablished as a separate condition from fibro with it's own list of symptoms and criteria . I have never seen a Dr so pissed at another Dr and so outspoken about it, and have no idea what to think, but I will admit, it has crossed my mind that despite the fact that my GP is clearly an intelligent man, he may not have been Valedictorian of his graduating class. lol
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