Posted 8/16/2016 12:07 AM (GMT -7)
Hi Bettsann, it sounds like your Dr. is on the right track, you do sound like me & I totally get what you are trying to say. Unless you live with CFS/ME it is hard to understand. I tell you, you could be me, I have CFS/ME, IBS & live with depression. I also was dx'd with Fibro but I really don't have much trouble with that very often. Today I am crashing, very tired & foggy brained, I spend my life very sedentary & I pace myself always. If I have to do something I always schedule rest after, maybe for the rest of the day depending on how I feel. Getting a dx for CFS/ME is by excluding everything else it could possibly be, therefore, you will have a lot of tests that come back normal until everything is excluded. It can be very frustrating because it seems like you are making no headway but you are. Just keep on with what you are doing & one way or the other you will get a dx. I have had this for 12 years & it took me several years of going from Dr to Dr to find one who knew what I have, of course when she told me I didn't believe her, lol. I wanted something fixable, but I do have it & I am glad I know what I have. I am 64 & I don't think age has anything to do with it, I know people of all ages who have this horrid illness. Take care of yourself & let me know how you are doing, this is not a very active forum but I come & check every couple of days so I will know if you post. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11