symptoms

I had chronic fatigue for about ten years with a reprieve for about 6 years.  Never feeling entirely perfect - but could still function daily routines without feeling allot of pain and refreshed sleep.  Because of a stressful situation -  it appears it has returned.  I am experiencing swollen glands for the past few months that has now become painful.  I also have insomnia - and sleep very little.  I have been told by the doctor she feels it is viral - yet nothing I do for it seems to help.  If anything it has become progressively worse.  I went to the hospital one day and the doctor stated that I may have EBV - I assuming it was the blood count which 10 or less is normal.  Mine read 10.4.  He stated to see my doctor again who had already stated this is not the case and that if my CFS has returned there is nothing I can do.  I remember a while back I was taking vitamins and other supplements.  It did not get me completely well - yet I was able to function better.  I tried changing different foods and yet it only helped somewhat.  When it seemed to be continuing for so many years I felt what do I have to lose and slowly added excercise for 15 minutes - non-strenuous that is everyother day.  However, at that time I was no longer feeling chills or had a low grade temperature or throat symptoms.  Yet what always seems so prevailing to me is the burning pain I get throughout my body.  Now I have tinnitis in the right ear because of the swollen glands.  It is effecting my job and I do not know what to do at this point since now I am a sole provider and am concerned about loosing my benefits as well as my home.  Is there some light anyone can shed on this dilemma.

The burning pain could be neuropathy. I have neuropathis pain and take neurontin for it and it does help. The thing that really stinks about CFS is that there isn't a lot that can be done for it as far as treatment.

Take care

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Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

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