Posted 10/27/2016 2:45 AM (GMT -6)
Diagnosed with CFS in April 2016. Gone from being very fit 35 year old who cycles loads, few marathons etc to now struggling to work longer than 3 hours a day. The fatigue is indescribable as you all know.
Since my diagnoses ive researched and researched as much as I can, ive spent so much money on tests and im still is the same position. I tested for Lyme with Germany company which came back IGM positive but my last known tick bite was july 2015 which means its maybe a false positive. I tested positive for EBV IGM, Coxsackie and mycoplasma also all done through german lab. NHS not interested at all and ive been left to it. Now struggling to work, do much with my son im completely lost. I still dont know if I have lyme, I have no idea if its viruses causing all this. I spoke with another german company who said they would treat my lyme and coinfections with antibiotics but im worried I shouldnt be taking them if i dont actually have lyme.
Any advice? Havent got a clue what to do and ive lost my job so funds are now very limited :)