Posted 1/13/2017 7:29 AM (GMT -7)
Hi Gemma & welcome to the forum. I can relate to a lot of your issues such as CFS, depression/anxiety & Gerd. It seems like CFS never stands alone. The depression & anxiety forums on Healingwell are very active, this forum is not. I like to come here every week & check to see i anyone has posted.
You are exactly right, the fatigue is different, it is not just regular "gee, I am tired I will go to bed & rest & tomorrow I will be good". No, we wake up tired because our bodies do not make the energy we need, I am hoping they will soon find the answer why this is happening. This is why pacing works for us, we can not do what we used to do, we just don't have the energy. I am sorry to say I have not found anything that has helped me to have my old life back. My vitamin D levels were really low & I take D3 everyday but it only helped a little. I found that getting a good nights sleep has helped me the most. I take Tizanadine, a muscle relaxant, to go to sleep & Trazadone to stay asleep. I still wake up fatigued but I do have a lot more clarity of mind & I can think & be part of my family. As I said pacing helps me to get things done around the house but I have to say that my home is nowhere near what it used to be, my standards have had to give way to what I can do as opposed to what I would like to be able to do. I had to let go of my old life & make a new life. As you can see I do ramble a lot because I have trouble following a train of thought to the end. lol but I have learned to live with it & live within my boundaries. Where I used to garden, hike, work, fish, camp, etc, I was very active. My life now is very sedentary but I get to read & learn a lot, I study my Bible often, I read up on plants & flowers because my daughter put in totes for me to plant a few things in. I do what I love but on a smaller scale.
I hope you find your answers, we all have to go through a trial & error on different things we need to try. I have tried eating many different ways & giving up things like flour or sugar for months to see of it helped. I did find I was sensitive to soy so I stayed away from it for years, I have reintroduced it slowly & can now eat it again. I have tried exercise until I realized that was a no go, etc. You have to finally come to a place of acceptance, then you rebuild a new life. I don't know where you are in the process but it is all important, all needs to be gone through.
Once again welcome, post as you need to & others will come by too. Let me know how it is going for you. Hugs, Denie
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11