Posted 3/17/2017 10:24 PM (GMT -6)
I created an account just so I could respond. I hope it's not too late. I agree with the above poster about low-dose naltrexone. I see Dr. Vera Nunez in Miami (part of Dr. Klimas' clinic at Nova Southeastern). She's an expert in CFS--I see her once a year, traveling from Seattle to Miami. It's worth the trip!
I don't know what to tell you about the wheelchair, bc I'm researching that myself. I'd say go with your gut. If you need it to get around, you need it.
As far as college goes--I can help you there. I just finished my PhD and masters, both while struggling with CFS/ME, fibromyalgia, hashimoto's, autonomic dysfunction, OI/POTS, and multiple immune deficiencies. You need to contact the disability office at your school and get accommodations for your illness. I'm not sure if you experience any cognitive dysfunction from your CFS (I did quite a bit), but most schools offer note takers, exam modifications (extra time, exams in empty rooms so you can focus, etc), and other reasonable accommodations. You just have to ask. Don't be embarrassed or ashamed. It's not your fault.
Also, talk to your professors if you're having trouble, they're usually very understanding. If they aren't, go to their department head. If you have to, you can go to the dean.
Don't overdo it. Don't join too many organizations and clubs, even if you think they'll help you. If you know people that will be attending your school, ask for help. It would be best if you had a roommate. You need someone to check up on you, someone who can help you on a bad day.
I'm not sure if this site has private messaging, but if you'd like to talk some more, send me a message (if they have that) or respond here and I'll give you my email or skype username.
I hope you're feeling better!