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wat does everyone do 4 the fatigue????help!

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wat does everyone do 4 the fatigue????help!  
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Posted 12/17/2005 5:45 PM (GMT -7)
i am so tired i cant do anything i have managed to get some of the pain 2 go away and the ibs almost there i think KNOCK ON WOOD!! but i tried provigil but it gave me d i tried like 2 other energy pills without caffiene but they didnt work, i tried one with caffiene it gave me d! it seems like caffiene is the only help. what doed everybody do??? ive tried alot of b vitamins cuz its supposted to help but nthg! mad   im really rying hard to fix things i have a friend who moved to florida and im from massachusetts where its freezing and i really wanna go but im still working on the ibd and the fatigue is terrible!!!!
love to hear from u.

                           

                          joci

28 yr old from mass. i got fibro, migraines, anxiety scholiosis and ibs-d.i also have difficulties with tollerating meds! and having major chronic fatigue

Posted 12/20/2005 5:47 PM (GMT -7)
nono  Caffeine is a fiend ! Notorious for it's ability to lift you up higher...only in order to throw you down all the harder ! yeah   The bounce it gives to your blood sugar is a truly evil effect...which makes you crave sugary foods...which stresses your pancreas...which affects your adrenals and your gut....

Personally, I am on a diet that avoids sugar ( you can't eliminate it) and salt (ditto), gluten and dairy products (I have food intolerances - you may not) and additives in general. As you might guess from the latter, it's also an organic diet, high in vegetables and nuts, seeds, grains. I am also taking probiotics and Aloe Vera, to help my damaged gut (I have been diagnosed with CD), and Udo's Oil, which is an Omega 3,6,9 balanced oil designed to improve my Essential Fatty Acid status.

I usually find that eating well is the key to avoiding fatigue...junk food is a total no-no. As in, no cost = no energy. There are days I've missed a cooked meal, and the fatigue kicks in within half an hour. I've come to think of the fatigue as "instant starvation".

Supplements - particularly vitamins - only work when other more basic biochemical infrastructure components such as EFAs are already in place to help your body make use of them. If your cell membranes lack the right lipids, they cannot process anything properly. Ditto for minerals. And to make things worse, some vitamins and minerals are "antagonists" - they mop each other up, preventing uptake.

In terms of behaviour, I find that treating exercise like I'm weight lifting is a good idea. If you remember that feeling tired is like a pain warning from your muscles, a little pushes your boundaries but too much is damaging, - then you will not overdo things.

I don't know if this is any consolation to you...but in my experience it takes years to get used to throttling back and taking it easy when circumstances other than your body's warnings say otherwise.

 

Posted 12/20/2005 9:56 PM (GMT -7)
thanks for responding I HAVE IBS-D SO I HAVE FOOD INTOLLERANCES AS WELL. ITS HARD TO EAT ANY DAIRY, RED MEAT, SUGARS. SO U CAN SAY I DONT EAT WELL IM TO TIRED TO COOK S SO I ORDER OUT ALOT AND I HAVE FIBROMYALGIA AND WEIGHTS MAKE IT WORST! I TRY WALKING WHEN I GET TIRED IT HELPS A BIT.I TRIED PROVIGIL FPR TIREDNESSS ITS GREAT BUT GIVES ME D! IT HAS ALOT OF MAGNESSIUM I GUESS SO THATS Y.
love to hear from u.

                           

                          joci

28 yr old from mass. i got fibro, migraines, anxiety scholiosis and ibs-d.i also have difficulties with tollerating meds! and having major chronic fatigue also acid reflex, astma, allergies and insomnia-at night. im tired all day.

Posted 12/22/2005 8:47 AM (GMT -7)
Joci I have same question as you, what do others her do for fatigue, its horrible evn with coffee, I have never tried provigil, not really that familiar with it, can anyone explain it a little further. Feel like I am on alot allready, but was fatigued before any meds, the darvocet actaully helps with energy when I take it, and even the valium when taken somewhat motivates me, but still overwhemlming fatigue. How does provigil interact with the other meds, i already have loose bowels ( IBS), so if it ( provigil) gave me enegry, I would deal with the IBS-D just to have more energy, and which type of soc would I ask, my fp, gyno-uro, pain mangement or pyhciatrist?
Sorry didnt mean to jump in on your thread , but you had same question I did?.. Any thoughts or suggestions, the b-12 sublinguals is all I can take, it doesnt do much. the pill makes me sick, now along time ago the shotsreally helped, but fp wont do it, so he proably wont presrcibe provigl either, thinking of phychiatrist best bet on the provigil. ANd if my fp wont give me b-12 shots who will, he says, there isnt anything wrong with the vitamin. ( except it makes me vomit, with or without food, no matter what timeof day I take!), Ok sorry so long..any thoughts???....
***Take care...Love...Sheryl***

.....SERENITY PRAYER.... "GOD PLEASE GRANT ME THE THE WISDOM TO ACCEPT WHAT I CAN AND CANNOT CHANGE, AND THE WISDOM TO KNOW THE DIFFERENCE".....

DX=IC,IBS,Excema,Bronchitus,Hypermobile,Migraines,TMJ.Lowback,kneepain,numbness,stomach,bladder,skin problems,fatigue,anxiety,depression. Rx= Celexa 40 mg,Valium 5mgs3xday. Neurotin=300mg PM. Darvocet, Atarax 25mg for IC, sleep. PT for back, PFD. Have scar tissue,endometrious?.....

.....Have 11yr old boy,ADHD,Bipolar. 6yr old Girl=HFA, Bipolar, Tourettes, OCD,Anxiety, & ADHD.

His Rx=500mg Depekene AM,PM, Celexa 10mg PM.  Her Rx= 5mg Buspar AM,PM. Prozac 10mg AM. 250mg Depekene AM,PM. 50 mg Impermine PM. Acidophilis= regulates bowels, helps prevent yeast infections in her  ....  HEALLING WELL  is the best forum for support..... Welcome all newcomers...

Posted 12/22/2005 4:43 PM (GMT -7)
hi sheryl, THE PROVIGIL ISNT COVERED BY ALOT OF INSURANCE ITS PRETTY EXPENSIVE ITS OK WITH ALL MY MEDS, UR NOT SUPPOSTED 2 TAKE IT WITH ALOT OF DEPRESSION MEDS I DUNO Y THOUGH! IT HAS MAGNESIUM SO THATS Y IT GIVES U D. I GOT IT FROM MY PAIN DR. ITS 200 MG I AM TRYING 2 C IF I CAN GET A LOWER MG. IM ON CHOLESTYRAMINE FOR IBS D ALONG WITH ELAVIL ITS HELPING SO I AM GONNA TRY TO ADD THE PROVIGIL BACK BUT A LOWER DOSE AND C IF I CAN TOLLERATE IT. IF UR IBS IS BAD U SHOULDNT TAKE PROVIGIL IT HAS ALOT OF MAGNESIUM AND THAT IS USED AS A LAXATIVE!!!!! U CAN E MAIL ME IF U WANNA NO MORE SEXIJOCI@AOL. GOOD LUCK AND IF U FIND SOMETHING FIRST LET ME NO.
love to hear from u.

                           

                          joci

28 yr old from mass. i got fibro, migraines, anxiety scholiosis and ibs-d.i also have difficulties with tollerating meds! and having major chronic fatigue also acid reflex, astma, allergies and insomnia-at night. im tired all day.

Posted 12/23/2005 8:17 AM (GMT -7)
Oh, so I should probably not take it, if D is already a problem. ANd I am on anti depressants meds. darn!! I needs soemthing for fatigue, I can tblame my meds, It was actually worse before and of my meds, but still at a point I really wish there was more I could do about it. I will email you, thanks for the info...
***Take care...Love...Sheryl***

.....SERENITY PRAYER.... "GOD PLEASE GRANT ME THE THE WISDOM TO ACCEPT WHAT I CAN AND CANNOT CHANGE, AND THE WISDOM TO KNOW THE DIFFERENCE".....

DX=IC,IBS,Excema,Bronchitus,Hypermobile,Migraines,TMJ.Lowback,kneepain,numbness,stomach,bladder,skin problems,fatigue,anxiety,depression. Rx= Celexa 40 mg,Valium 5mgs3xday. Neurotin=300mg PM. Darvocet, Atarax 25mg for IC, sleep. PT for back, PFD. Have scar tissue,endometrious?.....

.....Have 11yr old boy,ADHD,Bipolar. 6yr old Girl=HFA, Bipolar, Tourettes, OCD,Anxiety, & ADHD.

His Rx=500mg Depekene AM,PM, Celexa 10mg PM.  Her Rx= 5mg Buspar AM,PM. Prozac 10mg AM. 250mg Depekene AM,PM. 50 mg Impermine PM. Acidophilis= regulates bowels, prevents yeast infections in her.  HEALLING WELL  is the best forum for support I have seen....... Welcome all newcomers.....

Posted 1/4/2006 10:09 PM (GMT -7)
I did just post a msg relating to cfs and fms but I did find out one very interesting thing about the anti depressant they put me on. I only take 75 mg a day of Effexor XR but oo myyy does it help in the energy. Twenty minutes after I take it, I actually feel it kick in, I wake up and start to work on the farm we own. Granted it doesn't last long because I do take a nap every day but it sure helps get me going for several hours. They have had me on just about every anti depressant made and this seems to be the one that has finally worked. Hope this helps a bit!
Posted 1/4/2006 11:12 PM (GMT -7)
I wish effexor gave me energy too :(
dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.

rx: Effexor, clonazapam, baclofen,Tylenol#3,iron pills,synthroid

supplements: probiotics, garlic pills, magnesium, melatonin, b12(sublingual)

 

Jerrimiah 29:11

Posted 1/13/2006 5:29 AM (GMT -7)
I used to be a workaholic. Now I've had CFS for 25 years. Have no energy and nothing I've tried has given me any. I take Effexor for my depression, but it gives me no energy.

I keep reading about people who have success w/ one supplement or another, but so far none of helped me. If I could only find that bottle w/ the genie.
Posted Yesterday 12:00 AM (GMT -7)
snohare gave the best answer there is, but most folks don't want to be bothered with it or like me, just can't afford all the supplements, etc..

I eat as healthy as possible ... but I'd rather drink coffee than take any drugs for energy, if I had to weigh the side affect differences.

The less drugs the better - my liver and other organs say. Most especially mood altering drugs. I'd rather cheer myself up some other way and I sympathise deeply with anyone who fights depression. Been there done that and I 'battle' for at least a few minutes with it now, if I'm not careful. Had the organic kind of depression that comes with this disease of the brain (Lyme/CFS), so that was a real battle to learn how to take charge of, without help. But Thank God Only, He threw me a lifeline and at the same time, showed me the way out.

These drug commercials crack me up sometimes. The side affects are worse than what you're being treated for. One side affect was lymphoma, and what it was for was some mild illness. Go figure.
Late Neuro-Lyme & CFIDS. 

Posted 2/12/2006 2:49 PM (GMT -7)
I too had fatigue problems, tried and hated the pharma's, but I found one herbal formula that did the trick wonderfully.  I don't normally recommend products but this one gave me energy, didn't stress me out, and really lifted my mood. It really helped me out in a tough time too as I was getting depressed as well as lethargic.  My wife loves it too for what it has given me back.  Good good stuff. http://www.21stcenturyorganics.com/nutritional-supplements-catalog.php and they have plenty of info about why it's good stuff. I hope it helps you as much as it did for me.
Posted 2/17/2006 1:19 PM (GMT -7)
The first 4 years I took a lot of different meds but my body couldn't handle the side effects of most meds. Over the years I've noticed that staying as stress free as posibble helps alot. Of course it's hard to eliminate all stress but you have to try. I also learnt that when I do have a "good day" to not push myself too much to make up for my "bad days". I take it one day at a time, one activity at a time. I've been coping as best I can with CFS for 8 years now. On good days I try to go outside for a walk, not a fast or long one, just a walk to stretch my legs and get some fresh air. Most of the time I think I'm too tired to go outside and walk but once I'm back home I feel a bit better, at least mentally if not physically. I also am very aware or what I eat and drink; I try and stick to foods that are the most natural...you know, fruits, veggies, non-processed food. I noticed that when depression sets in, all my symptoms are aggravated and my exhaustion is really bad so it's very important to stay positive (which is really hard to do if you're new to CFS) Hope my input helped you a bit
Posted 2/18/2006 3:04 PM (GMT -7)
sad  hi, I'm artpainter44 AKA Jude & I really am an artist with a BA in Fine Arts (big deal...minored in French & psych), got Crohn's at 16, didn't know it. Small town. Laxatives prescribed. WRONG! But who knew. And a Dr...2 in town, period, the better one wouldn't allow his ego to admit that I should be sent to Denver or at least Colo. Spgs. (Colo. woman,yes) for testing. So it came & went until I had to have emergency surgery at 23...another surgery at 29. On  birth control pills, ended up with phlebitis in both legs;surery on rt. leg...nearly 3' string of clots removed from deep vein; same surgeon who did all three of mine. Good guy, old army surgeon, but this all happened way back when. Messed up my tennis & B ball for awhile, but last surgery, I ran a fever for ages, had picked up a virus in hosp.& CFS, too, though it took awhile for me to realize there was a real problem.Diagnosed in 1990 with CFS at Nat'l Jewish hosp., where an allergist sent me because he knows Dr. Jim Jones who was working with actual patients then;he's research primarily.Anyway, I've been trying to deal with CFS since 1969. I"m 59 yrs. old, but a very cool 59, so don't let that put you off.I've seen a lot...well, this is getting too long;just know that back in the late 60's 7 early '70's there was no medicine for crohn's except asulfadine, didn't help, & surgery for the severe form.TAKE CARE ALL OF YOU. Glad I found this site;I'm new at the computer & can't type worth snot..anyway, bye for now , Jude artpainter44.
Posted 2/24/2006 2:06 PM (GMT -7)
I've been taking Provigil and it's worked WONDERS for me! Yes it is incredibly expensive, but I'm fortunate enough to have a doctor that keeps getting me these "cupons" for Provigil so I don't have to pay for them.

As far as drug interactions, you have to check with your doctor or pharmacist for which meds you can and cannot take with Provigil. I'm also on Lorazepam for anxiety, and that's fine.

Coffee or any caffiene has no effect on me anymore, as I've built up a tolerance to caffiene over the past 10-11 years I've been dealing with CFS. I can have 4 shots of espresso and go right to sleep!!!

But, I'll get up in the morning, and with my cup of coffee take my Provigil (200mg, once a day) and I'm good to go! I don't have any side effects, other than I'm awake, alert and can focus and don't feel like I want to sleep all day!!!!

*******side note*******

Anyone considering talking to their doctor about Effexor. BE CAREFUL!!! I was on Effexor once before, and it was literally h-e-double hockey sticks on earth. The withdrawls are HORRIBLE... horrible to the point I wanted to die so I didn't have to feel that way anymore. A lot of doctors (my past doctor included) do not know of the horrible side effects you can have, and over perscribe it. My new doctor explained to me that Effexor is really only effective for few people, and he said that doctors sometimes overlook all of the possibilities of the side effects.

I've found nothing in my research that says that Provigil contains high levels of magnesium though.
Hugs,

Nikki

I do not know what's wrong with me yet, but hopefully I'll find out soon :D

Posted 3/5/2006 11:09 PM (GMT -7)
this will be short;it's about the fatigue post;i don't , can't really do anything right now;i can type a little, so it's better ...i have a list of sfids symptoms that are longer that a monthlong grocery list; won't go into it un less asked...later artpainter;    to the administrators;why did 3 post replies comr out earlier?besides my not knowing what i'm doing, i mean...or is that it? I can take it...I trued to e-mail you, too; my usual proper password was denied # times'chane to .net cause it? or what?  artpainter44 caat-humane@comcast.net redface sad confused
Posted 3/31/2006 3:12 PM (GMT -7)

yeah  Hi Joci,

I think your question is so much in need for an answer for all of us... I thought thatnk God I'm not going crazy as I can not figure out how to live life on empty all the time.  I am also allergic to caffine and sugar pretty much all refined bad carbs.  But when you have no gas as I call it to keep going I have in the past got hooked on those mocha coffee's and just bad crabs. So it makes me have this energy for a short time just to hit hard rock bottom later.  So a visious cycle.  I have yet to find out how to give myself energy with out the blood sugar drop.  if anyone knows please pass it on.  Sorry no help confused

hugs, Donkey

 

  Donkey ears watching over me~ALWAYS...

Posted 3/31/2006 3:18 PM (GMT -7)

snohare said...
nono  Caffeine is a fiend ! Notorious for it's ability to lift you up higher...only in order to throw you down all the harder ! yeah   The bounce it gives to your blood sugar is a truly evil effect...which makes you crave sugary foods...which stresses your pancreas...which affects your adrenals and your gut....

Personally, I am on a diet that avoids sugar ( you can't eliminate it) and salt (ditto), gluten and dairy products (I have food intolerances - you may not) and additives in general. As you might guess from the latter, it's also an organic diet, high in vegetables and nuts, seeds, grains. I am also taking probiotics and Aloe Vera, to help my damaged gut (I have been diagnosed with CD), and Udo's Oil, which is an Omega 3,6,9 balanced oil designed to improve my Essential Fatty Acid status.

I usually find that eating well is the key to avoiding fatigue...junk food is a total no-no. As in, no cost = no energy. There are days I've missed a cooked meal, and the fatigue kicks in within half an hour. I've come to think of the fatigue as "instant starvation".

Supplements - particularly vitamins - only work when other more basic biochemical infrastructure components such as EFAs are already in place to help your body make use of them. If your cell membranes lack the right lipids, they cannot process anything properly. Ditto for minerals. And to make things worse, some vitamins and minerals are "antagonists" - they mop each other up, preventing uptake.

In terms of behaviour, I find that treating exercise like I'm weight lifting is a good idea. If you remember that feeling tired is like a pain warning from your muscles, a little pushes your boundaries but too much is damaging, - then you will not overdo things.

I don't know if this is any consolation to you...but in my experience it takes years to get used to throttling back and taking it easy when circumstances other than your body's warnings say otherwise.

Hi I jst wanted to say, i agre with you about caffine way up to way down for us.  You sound very knowledgeable on eating right, so would love to know if you could tell me where do i start first on changeing my old way of eating , for me it would be a diet of no refined sugar bad carbs kind of like atkins, but would love if you could tell me in the right order so I can stick to it.

Thank you, hug...

Donkey

 

  Donkey ears watching over me~ALWAYS...

Posted 3/31/2006 4:40 PM (GMT -7)
thanks for all the incredible input, wow...nikki, i had the same experience as you w/effexor...& similar with cymbalta,,god let them find some thing soon some common bond so they can come up wit better meds..wouldn't it be grear if they come up with i1that would work for us all...dream on...i'm grateful they're working on it, tho;n as well as all the other things.the other day, a young guy asked me what advice for life i'd give him...he's a neighbor, about7...cute as a button;we've t
been thght since his family moved in awhen he was 2.he's 7; probably won't remember, but i told him to take care of himself, let his mom take him for chechups, etc. he's a serious kid;wrote it down for his mom! i wish him and all of you/us better health.there's nothing more important, except love, i guess.ok/...did i get my 489900 words in yet?!

i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how  we handle them.   that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help.  so do things like YOU do them;with the docs help

bob dylan said, "I aint gonna work on maggies farm no more            you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.

Posted 3/31/2006 4:44 PM (GMT -7)
thanks again all of you i'm going over all the info carefully & appreciate all input...hugs

i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how  we handle them.   that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help.  so do things like YOU do them;with the docs help

bob dylan said, "I aint gonna work on maggies farm no more            you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.

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