Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

DR's tell me I'm fine...

Support Forums
>
Chronic Fatigue Syndrome
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
bukowski
Regular Member
Joined : Jul 2015
Posts : 27
Posted 5/16/2017 7:27 PM (GMT -7)
I cannot seem to get anyone to listen to me, or at least acknowledge that I am not feeling well. I know I probably don't have CFS, I know very little about the severity levels of the disorder. But, Something is not right.

My brief history: Diagnosed with autoimmune hep in 2000. Eventually, caused cirrhosis of the liver. Needed a transplant & received one in 2012. In 2015, I was diagnosed with UC and had my colon removed resulting in an ileostomy. I've been on a ton of meds since 2000. Soc. Sec. stopped my disability in 2016 informing me I should be able to return to work full time. I disagreed, but lost the appeal. I tried full time work and physically could not do it. I have managed to keep a very part time job for the past 7 months, 8-20 hrs/wk. I am exhausted and in pain all the time just from that. Swollen ankles, back & leg pain, headaches and leg cramps and abdominal pain at times. I need to lay down after working just a 4 hr work day. It's hard just to make it through the day without having to sit down in the bathroom at work for a short time. I've seen 3 doctors and they all say as long as the blood results are fine, there is nothing there to diagnose. I'm just frustrated and I feel like everyone thinks I just want to get out of working. Prior to 2000, I worked 40-50 hrs/wk and loved it. I don't know what type of doctor I should see, if any. Can anyone help me? Thanks for reading.
profile picture
straydog
Forum Moderator
Joined : Feb 2003
Posts : 18322
Posted 5/17/2017 11:10 AM (GMT -7)
Hello & welcome to Healing Well. It sounds like you have a an awful lot on your plate with the health issues. You mentioned your SSD was stopped back in 2016. At that time were you still under the care of specialists that continued to state in their medical records that you were still disabled? I know SSD can be awarded on a temporary basis & then they review the claim to see if the person is still disabled.

I know you have mentioned seeing various drs & none of them coming up with a diagnosis as to why you are in the shape you are now. Have you ever been seen by an internist, preferably someone that specializes in internal medicine? An internist takes a different approach than a general practitioner or family practice type of drs. They tend to view the problem as a whole rather than concentrating on one thing. It is really difficult for me to explain but a good internist can be valuable to someone with multiple issues. You mentioned you saw 3 drs that said your lab work was fine, what kind of drs were they?

Take care.
✚ New Topic ✚ Reply

More On Chronic Illness

We Are All Connected

We Are All Connected

The Coping With Chronic Illness Self-Care Quiz

The Coping With Chronic Illness Self-Care Quiz



HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter InstagramInstagram PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.