Posted 5/16/2017 8:27 PM (GMT -6)
I cannot seem to get anyone to listen to me, or at least acknowledge that I am not feeling well. I know I probably don't have CFS, I know very little about the severity levels of the disorder. But, Something is not right.
My brief history: Diagnosed with autoimmune hep in 2000. Eventually, caused cirrhosis of the liver. Needed a transplant & received one in 2012. In 2015, I was diagnosed with UC and had my colon removed resulting in an ileostomy. I've been on a ton of meds since 2000. Soc. Sec. stopped my disability in 2016 informing me I should be able to return to work full time. I disagreed, but lost the appeal. I tried full time work and physically could not do it. I have managed to keep a very part time job for the past 7 months, 8-20 hrs/wk. I am exhausted and in pain all the time just from that. Swollen ankles, back & leg pain, headaches and leg cramps and abdominal pain at times. I need to lay down after working just a 4 hr work day. It's hard just to make it through the day without having to sit down in the bathroom at work for a short time. I've seen 3 doctors and they all say as long as the blood results are fine, there is nothing there to diagnose. I'm just frustrated and I feel like everyone thinks I just want to get out of working. Prior to 2000, I worked 40-50 hrs/wk and loved it. I don't know what type of doctor I should see, if any. Can anyone help me? Thanks for reading.