I am sorry you are feeling so lost & alone. Having ME/CFS is no picnic & we are really sick. When we become sick we will go through all of the stages of grief for all that we have had to give up. Once you hit acceptance it will get better. Not physically, at least not in the sense that your illness gets better but the lack of stress from worry & sadness helps our body's to relax & get on with life as it is now, our new life.
I do not have a Dr who really understands my illness but she is good at helping with my symptoms. A Rheumatologist diagnosed me but then turned me over to a GP from then on. I have had several different GP's over the years, some have been good some had not a clue about ME/CFS.
Sounds like you need to learn to pace yourself. When we overdo it through any kind of energy usage (physical, emotional) we end up with PEM, post exertional malaise. This is when we have used all of our energy for the next day today & crash. This can last for a few hours but most likely will last for a day or up to several months. If you don't pace your energy, you will continue to crash & it does seem to have a cumulative effect. At first I overdid it so I found myself in bed most of the time unable to do anything. Now, I rest a lot & find things I enjoy doing that don;t take too much energy. I try to get out at least a couple times a week for a little while just to be around people & away from the house.
Take care of yourself & don't think about what other people are getting to do, it is only a downer. I have come to terms with the fact that I am sick, truly sick but I want to be happy too. So that is what I shoot for when I have some energy. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11