Hey everyone, I am new to this forum. I am here in hopes that someone knows about
what I'm going through and how to treat it and also if anyone has ever been through what I am going through.
For the past year I have been housebound. I'm going to try to condense this as much as possible. So I'll start with here the timeline of symptoms throughout all of this breaking it down into stages of which things happened.
Stage 1 Muscle cramps, GI symptoms (3 months)
I got food poisoning about
6 months before I got very sick and became housebound. My first severe symptoms were horrible muscle cramping. Potassium and magnesium gave me slight relief also soaking in Dead Sea salt baths daily. This went on for about
3 months without me having any clue what was happening. I finally went to a homeopathic nurse who tested me and found a whole lot of things. Bacteria, candida, heavy metals, parasites and possibly Lyme but she wasn't sure about
Treatment : eating potassium rich foods and taking magnesium supplements and baths.
Stage 2 Joint pain/inflammation (3 months)
The week I got somewhat of an answer to my problems, my symptoms changed from muscle cramping to joint inflammation which caused me severe pain mainly in my spine but also just about
every single joint in my body. My knees, knuckles, elbows were all red. At this point we decided to treat the bacteria with homeopathic drops. I noticed about
50% less pain after about
a month being on these drops, and my tests with the nurse (using electromagnetic frequencies) showed my bacteria was dramatically improving.
Then I got food poisoning from undercooked chicken and my pain came back and it was just as severe if not worse than when I first started treating it. So I kept on the drops and after about
another month my pain was gone almost completely at some points. During the last month of this stage (lasted 3 months) I noticed sometimes my heart would race upon standing. Also developed bad food sensitivities to bone broth, eggs, grass fed organic hamburger and a hot dog. I got hives on all my joints. I cut out all those foods and my pain got a lot better but I was feeling tired. My diet of this point consisted of mainly vegetables, wild caught salmon, chicken an turkey. I didn't think much of the fatigue at the time but here is where my symptoms changed.
Treatment: focus was on killing bacteria and healing the gut.
black seed oil, ozone rectal insufflation, garlic, Oregano, bacteria chord drops, low dose probiotics (5-10 billion a day) was all I could tolerate at the time and never built up, zinc, bone broth, magnesium, multi vitamin, essential oils for inflammation, turmeric were the main things.
Stage 3 bedridden fatigue (3 months to present 11/12/17)
So at the end of my last stage, I thought I was almost healed since my pain was leaving me and my bacteria tests from the nurse showed it was almost gone. But my fatigue worsened. Within a week of having my pain drop I completely crashed. I was bedridden and have been ever since. I've gotten to the point where it's too hard to use the toilet or else I crash so I use the bathroom in bed. about
2 weeks after I crashed, I found a doctor who ran some blood tests. His results showed that I do have some bacteria or SIBO, tons of gut inflammation, Lyme was negative on western blot, but he did find that my C4A levels were high, they were in the 6000s, my vascular endothelial growth factor was very low and he thinks that I have mold biotoxin illness. He wants to put me on cholestyramine but I'm not sure if I can tolerate it at this point. Also got my cortisol levels checked a few times and the first time they were just slightly below normal in the morning and at night. He tested thyroid and my reverse t3 was very high which points to hashimotos. The adrenal part is what confuses me. It says I'm slightly low but I am completely bedridden. There have been moments where I've been shaking because of lack of sodium, and I take a big pinch of Celtic sea salt and it makes it stop. I'm chronically dehydrated but my adrenal labs are basically normal? I tried cortef in the morning and it actually helped, but only if I took like .5 mg. If I took more I couldn't tolerate it. I have this inflammation,popping pain right where my adrenals are and I've been very stressed a few times and felt the same inflammation popping pain in the back of my legs. But I don't get how my symptoms could be so severe if my cortisol levels aren't even that bad. It seemed to me like I was almost going into a crisis with the back of the leg pain. So after all the pain in the back of the leg thing, adrenal pain below my rib cage and back I got my cortisol tested again with the spit test. Morning was high at 13.2 and the rest were in the normal range. I'm way worse off though since when I first crashed. So I've been trying to treat the adrenals and so far nothing has worked. I am now starting to kill the bacteria off since about
2 weeks ago from posting this as well as try and support the adrenals because I still feel there is an issue there. I took a break from killing the bacteria for the first few months of this stage because I didn't think my body could handle the die off.
Treatment : vitamin c, b complex, magnesium, zinc, pantethine, licorice root, adreset, vitamin D, berberine, probiotics (im up to about
30 billion a night now) colostrum, omega 3 fish oil.
I believe I have mold illness, bacteria, adrenal, thyroid, heavy metal, candida, parasites (though I think they are just pin worms)
Hopefully this wasn't too long, but my questions are, has anyone gone through this and made it through the other side, does anyone know what order to treat these things in, and what other ideas to treat me with.
Thank you for hearing me out I hope we can come up with some solutions.
Post Edited (Vdawg11) : 11/14/2017 8:24:01 AM (GMT-7)