Sick for months, "post viral syndrome"?

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MagnumPI
New Member


Date Joined Jan 2018
Total Posts : 3
   Posted 3/2/2018 11:44 AM (GMT -6)   
I have had a "fever of unknown origin" for 2.5 months now. The last time I was at work was before Christmas (I am on leave right now).

This all kicked off with the worst sickness of my life. I thought I had a really bad case of the flu as I got sick right after flying. I can tell you the exact date and time I became sick (December 18th). After the new year, I went to the doctor because I felt like I'd been on the verge of death for over two weeks at this point. Got put on a zpack, which cleared up some sinus pressure I was having but the fever and major fatigue remained. I also lost about 10 pounds the first month I was sick because I had NO appetite. My appetite is now normal, but this fever remains...

The fever is low grade (between 99-100 F). I have had tons of bloodwork done to no avail. My CRP is mildly elevated (.54 with a normal range of 0 to .29) and my IgM immunoglobulin is low, but IgG and IgA are normal. I tested positive for past EBV and CMV, but no current infections. Many negative lyme tests. Negative for all kinds of hepatitis, HIV, etc. Had a CT scan that turned up nothing by a thyroid nodule. I've been told we can monitor the thyroid nodule, but all my thyroid lab work is normal so that's apparently not the issue. My CBC is normal. Normal ANA and rheumatoid factor.

After seeing infectious disease, cardiology (normal echocardiogram and holter monitors), and endocrinology, I was sent to rheumatology. She seemed frustrated I was there, and told me "I have no idea why they sent you to me, this isn't a rheumatology issue". I don't know where to turn next. I am sick, and no one can find a reason.

People are starting to throw around the term "post viral syndrome". Apparently you can have low grade fevers with PVS according to some of the doctors I've seen. When you punch that into google, you get articles on CFS - although I'm not convinced this is the same. I'm a 28 year old female who was healthy before this...

I guess I'm just here looking for support. Is this really what could be causing my problems? I'm afraid that despite this extremely expensive and thorough workup that we've missed something else dangerous. Meanwhile, my life has ground to a halt... I was supposed to move in July to start a new job, and I'm afraid I won't be able to if things continue like this.

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 276
   Posted 3/11/2018 6:34 PM (GMT -6)   
A virus is what kicked me into my 4 year journey with chronic fatigue a few years ago. I went through the shock phase for the first 6 months wondering what the heck happened as most of the tests came back negative. I even went to the Mayo Clinic here in MN for a full work up, and literally nothing showed up. I then turned to adderall and vyvanse as medications to help me. It broke the brain fog down and gave me some zip to continue working. I honesty think that without those meds I would have had to cut back a lot and put my career on hold. Things cleared up for me 3 years ago though, so it can run its course.

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9196
   Posted 8/6/2018 9:48 PM (GMT -6)   
Hi,

Just checking to see how you are doing. I've had CFS for many years and it's a very frustrating disorder. Might not be what you have but it's worth looking at. Here's something I found that might be of interest to you.

"Post-viral fatigue seems to be triggered by a viral infection. In learning about your condition, you might come across information about chronic fatigue syndrome (CFS). This is a complex condition that causes extreme tiredness for no clear reason. While some consider CFS and post-viral fatigue to be the same thing, post-viral fatigue has an identifiable underlying cause (a viral infection)."

Keep in touch.
Warmly,
Chutz
Fibromyalgia (chronic pain), IDDM (diabetes). Ulcerative Colitis, , Osteoarthritis, Degenerative Disk Disease, Depression, Chronic Fatigue Syndrome, PTSD and others trying to mess up life.
~~~~~
The microwave oven is the consolation prize in our struggle to understand physics. ~Jason Love
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