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jek1862
New Member


Date Joined Apr 2018
Total Posts : 1
   Posted 4/13/2018 4:56 PM (GMT -6)   
I have been chronically ill for six years. The main symptom has been overwhelming fatigue. In 2015 I found an alternative doctor on the Internet who specializes in chronic fatigue syndrome. I had done some reading on the illness, and thought I may have it. Well, he confirmed it. Through a questionnaire. What makes chronic fatigue so hard to diagnose is that there is presently no blood test, saliva test, or ANY test for it. All you can do is take a questionnaire, filled with symptoms, and if you score high enough, the doctor will affirm you have CFS. Unfortunately, I was dismissed by this doctor after three months of over the phone treatment. He gave various reasons for the dismissal, including its complexity, and an inability to "get along" with him and his staff. His staff were very unprofessional, made many mistakes, and I called them on it, and I don't think they or the doctor liked it, so they just coldly got rid of me, without even discussing the matter with me first, to try and resolve it. Although you can never 100% confirm you have CFS, due to the lack of testing confirmation, I would say based on all I have read about it, I would almost certainly agree with the doctor that I do have it(as part of my condition). I also have adrenal fatigue(but I do not see a forum here unfortunately for that...it is so rampant, I think there should be), autoimmune disorders and TERRIBLE disordered and unrefreshing sleep, leaving me constantly exhausted. Before I got this, I was a relatively healthy person. But when I turned 50 everything changed. I got an intestinal gut disorder called C-Diff, which fortunately was cured by antibiotics. But I did not get better....in fact, I got WORSE. I was still very weak, no appetite, losing weight, nauseous all the time, and my sleep became very troubled and abnormal. I am thinking there was a link between getting the C-Diff and the eventual chronic illnesses that followed. Possibly, the antibiotics were to blame. I never realized how they can mess you up...especially your immune system. I also had some traumatic experiences with an individual prior to getting chronically ill. In all these six years, I have been to ten different doctors(MDs, conventional) and they all just gave me prescriptions to deal with the SYMPTOMS, they did NOTHING to try and dig and try and find the CAUSE(S) of my illness. Regular conventional doctors are just not taught in school to do this. That is why I have given up on them, because they have done me no good, and now I am seeking excellent ALTERNATIVE doctors, as that appears to be my only hope. I assume you know what I mean by an alternative doctors. These are not MDs...they go under other names, such as holistic, functional medicine, bio-identical, naturopathic, and others. They look for the cause of your illness and keep looking til they find it. They look at the body as an interconnected thing, and that is the case...yet modern conventional garbage medicine, separates all the body systems up and this is not the way to go. My main problem is my terrible daily sleep. It is absolutely miserable. I tried prescriptions for it, but they did not help, in some cases, made it worse. So I have taken natural supplements for sleep and they have not done much either. I never get a good night's sleep and wake up EXHAUSTED, and this has been going on for over 5 years. As a result, my life is a constant struggle and I am always tired all the time. I live alone and just trying to survive, I am so weak. I am almost a candidate for a nursing or rest home, but I am only 56, and do not want to go into those horrible places. I came here because I cannot find any support of any kind from anyone. All my family is gone, friends don't understand, and I refuse to go to any therapists for various reasons. This has been going on for 6 years, an eternity for me. I know some with chronic illness last much longer, but I am worried about my mental state as this just keeps going on and on. I desperately need empathy, compassion, and someone to share this with...preferably someone who sort of shares what I am going through.

There is so much more to tell, but I will leave that to future posts. My name is John. Thank you.

(I removed your phone number. If you want to connect with others, please put your email into your profile. Only registered members can see it, not the general public who browse the Internet. This is only a small measure of safety for you. Thank you.)

Post Edited By Moderator (Lanie G) : 4/13/2018 8:11:02 PM (GMT-6)


MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 4/16/2018 1:22 AM (GMT -6)   
Hi John, I was wondering if you have tried a change in diet? And did it make any difference?
Keep in there,

Andreas
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