Chronic EBV and low iron. Help!!

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Date Joined Jan 2018
Total Posts : 5
   Posted 4/20/2018 7:49 PM (GMT -6)   
Hi all. I’m new here. I’m a 51 yr old woman. I was just recently DXed with chronic EBV. I remember the initial occurrence. It was in September, 2011. I’ve hurt (achiness, warm, chills ever since). At that time I had severe, emotional, mental and physical stress. I had a sore throat, lymph nodes swollen and mild achiness. The pain just got worse over the next month and hung on until this day.

I’ve had numerous DXs. Most were just guesses. Only one was backed up by blood work. Thyrioditis. Ankylosing spondylitis. Psychological. Lymes disease. Hashimoto’s. EDS. And finally chronic EBV.

I’m positive on three of the four EBV tests. My iron is low. My ferritin is low. My FT3 and FT4 are barely low normal. I am positive for HLAB27. My blood pressure is high just recently.

I still have night sweats. The worst part is the achiness. It’s nonstop. Way worse in the am. As I “warm up” I’m better. I mean I’ve had four infants naturally. This is as bad or worse than those times. It’s insidious. I can’t exercise or shop or cook. I live on NSAIDs and more recently gabapentin.

It’s been 7 years. I’ve not wanted or considered suicide-but just to make the pain stop? I’m not depressed. In fact I love life. I’m a fighter. But after 7 years and this new DX? I’m wore down. The treatment plan is antivirals-both herbal and pharmaceutical. UBI treatments with ozone and boosting my natural defenses with supplements. Also I’m going to IV iron treatments.

I don’t have the strength to do all this driving and purchase the supplements. I don’t want to try anymore. Does anyone here have chronic EBV? Are you sore all the time? Tender muscles and tendons? Nothing on my doesn’t hurt daily. Help...

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Date Joined Jan 2005
Total Posts : 9195
   Posted 8/1/2018 9:42 PM (GMT -6)   
Hi Melissa~

Many of the symptoms you describe are ones I live with but I have fibromyalgia. Often people with fibro also have chronic fatigue syndrome. I'm not saying this is what you have but if you've not heard of it before you might consider going to that forum and do some reading in the Fibro 101 thread at the top of the page.

I hope you get to feeling better soon.

Fibromyalgia (chronic pain), IDDM (diabetes). Ulcerative Colitis, , Osteoarthritis, Degenerative Disk Disease, Depression, Chronic Fatigue Syndrome, PTSD and others trying to mess up life.
The microwave oven is the consolation prize in our struggle to understand physics. ~Jason Love
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