Posted 4/25/2018 8:21 AM (GMT -6)
I have been suffering with Lyme disease, for many years. Also EBV, CMV. Been treated with antibiotics, antivirals and natural supplements for a long time.I feel like an exposed nerve! Loud sounds, violent TV, crowed places, too much exhaust smells or certain scents give headaches. I have always been like that, but less at times and able to cope well. I go in and out of this anxiety/fear feeling. I'm seeing neurologist. The ID doctor I went to poo pooed the whole Lyme and confections diagnosis even though I have been positive in the past. He said I have Chronic Fatigue Syndrome if he was to diagnose me and told me to exercise and eat better. I have a fairly good diet and try to exercise here and there. I am so exhausted all the time. I just had a death in the family and been stressed and now feel like I am consumed with anxiety and don't know why. It's 24/7. Had it now for 7-9 months where it gets better then worse depending on stress. My hands tremor. I am just wondering if anybody else feels this way with CFS/ ME or anything else.
There are times in my life where I feel none of this ... and can usually get by with taking care of myself. I am on an antidepressant and vitamins and supplements and see therapist and psych doc and integrative dr. too. I'm just worn down. Any sharing on anxiety and hyperviligence would be helpful. I also go through depression with this but feel the anxiety leads to that. Anxious about being anxious and loosing my cognitive ability like thinking clearly, short term memory, word retrieval, no concentration making conversation, dizziness, organizing my thoughts, and making decisions. I'm 61 and the older I get I think the harder it is to bounce back. I know these are signs of depression and generalized anxiety, but feel there is more to this with all the viral load I have, and history of Lyme and infections. I feel like I am going crazy and main stream medicine can't help anymore. I am not working which makes it worse but grateful I am supported by my husband and can stay home but difficult because I don't feel productive. Anybody in the same boat and how do you cope?