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Fifteen Years With Pain

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Chronic Fatigue Syndrome
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DJ3791
Regular Member
Joined : Aug 2018
Posts : 27
Posted 8/26/2018 5:16 AM (GMT -8)
Not sure where to post this since I havent went to a doctor to check it out. Here is the story.

Im 45 and have a host of sysmtoms that come and go. Although one symptom tends to stay, and that is fatigue.

about 15 years ago, I started to develope a sharp pinpoint pain between a couple ribs near my heart and also acid taste in my mouth. . I did get an upper GI and there was definately reflux. Doctor prescribed Prilosec, which didnt help, so I started taking fomatidine. This helped slightly.

Over the next few years, the small spot of pain would develope into upper chest pain, which would revolve from front to back, and also left and right. Felt like someone beat me with a ball bat. Pain would sometimes completely go away for a few hours, thsn come back in another area.

Over the years the reflux got worse, and I noticed the soreness was travelling through the muscles and up my neck. . When I tilt my head down all those muscles down through my back feel really sore.

Eventually the pain made its way up to the back of my head and is now giving me headaches and sore eyes, burred vision, and making me dizzy/ off balance. Also my ears started to ring with a fuzzy high pitch hash type of noise. Ibuprofin helps but the pain returns.

Now every day I feel so sore and fatigued all I want to do is rest. I feel like my body has a fever but it checks out OK. My leggs seem weak , too.

One other problem is my lower back has pinched or ruptured discs, I have an inversion table which helps a lot , but I think these may or may not be related.
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trumpet123
Regular Member
Joined : Apr 2013
Posts : 141
Posted 8/26/2018 3:59 PM (GMT -8)
Sorry to hear how this has progressed for you.
Well i do feel hope for chronic fatigue syndrome sufferers when i read about the new research being done by Dr. Ron Davis on cfs. The open Medicine Foundation is bringing hope to those who have it. i encourage you to do a search on the new findings.
And i am looking forward to the symposium which will be online around Sept 29th. They are expected to provide updates and give out new information on their findings . i hope they announce a biomarker test that will finally bring credibility to this illness and allow people to know what is the root cause of their pain fatigue etc.
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Chutz
Veteran Member
Joined : Jan 2005
Posts : 9477
Posted 8/27/2018 8:07 PM (GMT -8)
Hi DJ3791~

I'm glad you posted about these problems. My suggestion would be to go to your regular doctor and discuss all of your symptoms with him/her. It's time to start from the beginning and try to find out what is causing your pain, if they can. You shouldn't have to suffer this much since there is help out there and you deserve to feel better.

One thing that's good to do is keep a 'pain diary'. Each day write down what your pain level, from 1-10, is during the day, what time it was, maybe what you were doing at the time it got bad, what you did to get some relief and whatever else might be helpful. Then when you go to your doctor appointment ask him/her to read through your pain diary with you. It will give him information about your pain and show him you are serious about getting some help by spending time making the diary.

Keep us posted.

Warmly,
Chutz
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ladybugdreams
Veteran Member
Joined : Jun 2008
Posts : 733
Posted 9/3/2018 8:15 AM (GMT -8)
Hi and welcome to the forum. I agree that you need to just start all over, start by talking to your Dr & let them know you really are searching for an answer. I like the diary idea, that would be a good start. Fatigue is a big part of this illness but I think the main symptom is PEM (post exertional malaise). It is crashing after having done some kind of an exertion and you then become so fatigued & sick you are in bed for a long time. PEM can arise anywhere from right after the exertion to two days later. Sometimes I think I have made it through without the PEM but then it comes crashing down & I am in bed for a long time. I spend a lot of time laying on the couch, as well, because I do like to see my family.

I was dx'd after a long time of going from one specialist to another, my Dr was as determined as I was to find the answer. When the answer came, by means of a Rheumatologist, I didn't believer her. lol I read & studied on it for about 6 months & then went back to her after more testing & she gave me the exact same dx. I hope you don't have it & it is something else, although the studies being done right now are exciting. Right now you can go to your Dr with a list of symptoms & a diary of those symptoms. You have something, go find out what it is. Hugs, Denise
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