Hia Mouse and artpainter,
good to see you Mouse . Sorry to be away from the CFS forum, but I think I told before how I stay away from this one and the Lyme one, because I don't feel I can do anything about those in my life and I like to get my mind off of them.
I'm sort of down today, so I thought I come see what artpainter had posted too.
An exceptional book would be by Katrina Bernes, a Dr. of Psychology who also has CFIDS/FMS and it's called "Running on Empty".
She also believes the benzos do about 5 postitive things in CFS people. 1- help with the cognitive impairment. 2-pain management. 3-anxiety control 4-depression control. 5-sleep aid.
She specifically was addressing Xanax (alprazolam) in those 5, but that not very far from clonazepam.
Most CFIDS and Lyme Dr.s also use Neurontin/Gabapentin, which I'm also on at a low dose.
I take .5 alprazolam and 100 mg. gabapentin 2Xs a day, if needed but always at bedtime. Like the Klonopin, the Gabapentin was an anti-seizure drug also ... but it works on the "gaba" in the brain, as you can see by the drug's name, and a shortage of "gaba" is what causes the anxiety in even healthy folks who only deal with anxiety.
The alprazolam is the only thing that stops my anxiety and the dreams from waking me up all night long.
I know they've helped with my cognitive too. I only take enough to feel normal ... never buzzed or dopey. Like Cheney said, if you're groggy or dopey, then the dose is too high.
There is plenty of science behind all of this, but the makers of anti-depressants compete with these anti-anxiety drugs. Unfortunately. Dr. Bernes is right in that xanax has helped with my 'new' depression that I never had before in my lifetime, due to what the Lyme is doing to my brain.
Anyhow ... On Andrew's thread, I think that was his name, grannycfs gave her web address, I'd recommend you send her a quick email to be placed on her newsletter list. It comes out once or twice a month, and some of the stuff is local to where she lives, but the rest is very informative. She's a saint. She's had CFS/CFIDS for over 20 years, so I don't recommend she be bogged with emails, but I can tell you she knows her stuff better than anyone I've met, about CFS/FMS. She just doesn't have time to post because she's very bogged helping folks like us.
Well, artpainter ... don't feel bad about the lengths of your posts. I beat ya there.
And I can read for a bit, as long as I remember to blink. Blink.
All the best to you Mouse and artpainter.
LateNeuroLyme + CFIDS = Lord knows what.
Romans 8:28 ~ And we know that ALL things work together for the Good, Y
for them that Love God, for them who are the called according to His purpose.