Hi, I've just joined up with this forum. My doctor suspects that I have Chronic Fatigue Syndrome, and I'm waiting to see a specialist. I guess I'm interested to see whether my symptoms are in line with other people who have CFS and I'd also like to connect with other people who are perhaps in a similar situation to me.
Sorry that my post is so long, but I have quite a lot of symptoms and they're complex. I will greatly appreciate anyone who takes the time to read and respond.
To begin, I should explain that I'm a 24 year old female and I'm married. I'm unable to work and am mostly housebound.
My problems began with pelvic pains about three years ago and lower back pain about 18 months ago. They bothered me, but neither my doctor nor gynaecologist could provide any explanation for these pains. I became tender all over my body in early 2005 and had 2 really bad doses of the "flu" in mid 2005. I was tested for glandular fever or epison barr syndrome in September, and it came back positive, although it wasn't clear how long it had been in my system for.
Eventually my pelvic and lower back pain got so bad that I wound up in hospital last October, with still no real explanation provided. I have since learnt that I have glands in those areas, and wonder whether it was glandular fever at that time. I gradually improved, but I left my job at the time as the pain was so debilitating and I needed to rest up to get better. November 05 was good, then I briefly got nerve pain in December which went away.
The next month, January this year, I developed a really sore throat, followed by nerve pains, joint pains, muscle pains and numbness all over my body from my scalp to my toes, including my ears and the inside of my mouth. My doctor was most concerned about the numbness and I had a lot of blood tests and a CT scan of my brain, but nothing was found.
At the same time, I also found myself constantly physically and mentally exhausted. At first I put the exhaustion down to the fact that I've been through a lot, but over the past couple of months it's gotten worse. I was initially thinking about getting back into the workforce, but now there is no way I could do that.
I tire quickly from doing anything at all, needing to sit down or preferably lie down all the time. My joints hurt when I use them (my wrists and fingers hurt now, but I want to do this) even holding a book open becomes painful. I get dreadful headaches and random nerve pain (short sharp pains randomly over the body). I'm still numb everywhere. The numbness seems to be skin deep, because when I press down, I find tender spots all over my body. I often ache continuosly in my head, or arms or back or legs. I also keep getting sore throats on and off.
Occasionally (once every couple or few days) my pelvic area and lower back ache a great deal after I pass urine, but I have tested negative to bladder infections. Yucky to talk about, but this is a health forum- I tend to have irritable bowel problems, and often narrow stools.
In the last few days I have started to get a funny ringing sound in my ears, on and off. It usually doesn't last long. I have also recently noticed a flickering on the edges of my visual field, but again it doesn't last long and has only happened a few times.
I'm currently waiting to see a neurologist. My doctor says they will probably want to rule out multiple sclerosis, but that it could be chronic fatigue, particularly with it following glandular fever or else fibromyalgia. From research I've done, I think it sounds like chronic fatigue, but I wonder how it lines up with your symptoms? I know that the symptoms, length of illness etc varies considerably.
I'm quite depressed as this is affecting my life so badly. I can't work and we have debts and a lot of goals and things we want to save up for. My husband works full time, plus he has to do almost all the housework and cooking at home. I feel like a burden. Also, I'm trying to keep up my friendships, but whether I drive to visit friends and just sit down at their houses or have them over, it just takes way too much out of me. I feel useless and lonely.
From your own personal experience, does this sound like chronic fatigue? And do you know anything that could help me live a more normal life? Your time and your feedback will be so greatly appreciated. Thank you.