Wondering how you got diagnosed

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Regular Member

Date Joined Feb 2006
Total Posts : 214
   Posted 3/21/2006 1:02 AM (GMT -6)   
Hello, Ive often wondered if I have this. My dad had chronic fatigue syndrome. I have Crohns disease, and it seems like almost every time my Crohns goes out of remission, I also get mono. To my knowledge, most people only get mono once, other than that then its either epstein barr or chronic fatigue syndrome. Even when I am in remission I am always tired, but then again I also dont get much sleep. But I find it weird that i have gotten mono numerous times and it hasn't been diagnosed as anything else. . .it just seems to me that its some sort of chronic mono - ie something like cfs. what does you think?

obs ann
Veteran Member

Date Joined Jan 2006
Total Posts : 679
   Posted 3/21/2006 8:06 PM (GMT -6)   
Hi Sara.
Sorry to hear of all your health struggles. These multi-symptom things are a challenge.

I'd have to say, the best way is to find a support group in your area and they can tell you where the CFS doctors are in your area, besides being there to email with and to get info and feedback from the group.

Two sites to find Support groups in your area are  www.cfids.org and   http://www.immunesupport.com/supportgroups/

You'll have to email the first one and the second one has blanks to fill in, after you read their paragraph there.

More than likely, with all you have, the chances for at least CFS is there. Crohns and IBS are common with it and the viruses that reoccur that you've experienced with the mono, is also.

With CFS, you not only have the Immune-deficiency going on but an auto-immune.

That second site above "Immune Support" is outstanding for CFS and FMS. They have a forum and tons of articles. I particularly like Dr. Cheney, just for one.

Hope this helps and hope you can see remission in the near future.
All the best.

LateNeuroLyme + CFIDS = Lord knows what.
Romans 8:28 ~ And we know that ALL things work together for the Good,   Y
for them that Love God, for them who are the called according to His purpose. 

Regular Member

Date Joined Dec 2005
Total Posts : 211
   Posted 3/30/2006 6:53 PM (GMT -6)   
Hi Sara,
I just got on here...I normally am on the Crohns Forum. I have CD too. I was wondering the same thing. I am so tired all the time. I get so sleepy it's like I'm drugged. It's hard to wake me. I have to have a nap every day and am just lethargic. This has just happened in the last month or so. I don't understand. I think I will mention it to my GI next week. I wonder if it has anything to do with the CD? If anyone has any suggestions...please let me know. Tam
we live, we love, we forgive and never give up...cuz the days we are given are gifts from above and today we remember to live and to love...
34 yr old wife and mother of 3 boy's
     DX with Crohns Feb. 2004
  Re-diagnosed with Crohns Dec. 2005

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/1/2006 9:32 AM (GMT -6)   
Sara, I believe there is something called chronic epstein barr also - you could ask your doctor about it. My brother had it and eventually recovered to some degree, but he still gets tired easily and seems to get sick pretty easily. I'm sorry you ahve been feeling so rotten lately. I hope you get some answers to what is going on.

Take care
Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991
                Mono 1985
Meds:  Plaquenil 400mg; Tramadol 100mg 3-4xdaily; Amitriptyline 10mg
          Neurontin 200mg; Steroid Cream and Mouth Rinse for mouth
          and tongue ulcers
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