hi, hi hippimom;thanks for super-post;noway too long, not long enough.while i'm thinking about
it, i thought they had a test for lupus that is accurate;unlike cfs is a syndrome of exclusion, but they have some new stuff ,i guess, that they look at.i wantto talk a lot more with you later;i'm having a bad day so far ;i may feel better tonight...i often do, don't have a clue why.it's like some of the muscle weakness just lifts & it can last for 2min. to 3-4 hrs. strange.i hate the days when i'm too weak to shower...stuff like that;a shower day is a good day, even if it makes me too tired, meaning weak, to do much else.the longest it ever had me in bed was about
2 months in 89...that was horrible.too weak to get out of bed;i got a diagnosis thanks to an allergist i went to;i'd sneeze before igot sick, so i figured allergies;wrong...i'm allergic to compazine..facial paralysis, but no other allergies. cfs mimics allergies sometimes, then go away for weeks with no diet change...my allergist sent me up t a hospital in Denver..nat'l jewish, tho i'm not jewish..lucky you don't have to be;tests all day just about
, ruled out lupus, ms, etc...lots of stuff;diagnosis cfs.that was in 90. more later, ok? tc & biiiiigghugs.
i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how we handle them. that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help. so do things like YOU do them;with the docs help
bob dylan said, "I aint gonna work on maggies farm no more you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.