artpainter, I have several health issues going on. I think it all started with a bad case of mono I had when I was 18 (21 years ago in 1985). I don't feel like I was ever the same after I had mono. Then in 1991 I was constantly tired and felt rotten all the time and finally a doc said he thought I had Chronic Fatigue Syndrome - that was when there just started to be a lot out there in the medical community about
CFS. Eventually I started feeling better and got into running, got married, went to grad school, had 2 kids, BUT every so often my body would crash and I would get really sick. about
2 1/2 years ago I got really really sick with muscle weakness, joint pain, and fatigue so bad that I would go to bed at 6pm and still have to take naps during the day if it wasn't a day that I worked. My family doc ran a bunch of tests and some blood tests indicated possible lupus, so i went to a rheumatologist and now I am being treated for lupus. It really stinks because I have been really sick the past several years and have had to give up most things I enjoy. Thankfully my husband has been really supportive, but I know it has to be hard on him and my family has been pretty good. I know it's hard for my kids (4 & 8) because I can't go outside and play much with them anymore.
you? Have doctors determined that you have CFS or are you waiting in diagosis limbo?
I love talking about
music and I love Joni Mitchell and Gordon Lightfoot. I'm always looking for some good new music to listen to. As for my guitar playing, I'm not great but I can learn things pretty easily. My older brother is the one who has natural talent with the guitar and he has taught me a lot. I also order some books with guitar tabliture and can learn pretty easily from that. When I was younger, I had always wanted for my brother and I to play guitar and sing together in some local bars in Colorado (We both lived there for a little while). Both of us have okay singing voices by ourselves, but for some reason our voices blend really well when we sing together.
Okay, I've rambled on way too long.
Diagnosis: Suspected Lupus 2004; Raynauds 2006; CFS 1991
Meds: Plaquenil 400mg; Tramadol 100mg 3-4xdaily; Amitriptyline 10mg
Neurontin 200mg; Steroid Cream and Mouth Rinse for mouth
and tongue ulcers
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