My brother had chronic EBV that was active about
15 years ago and was really sick with it for quite a while and hardly able to function. Fortunately he finally got better but he gets tired easily still and if he doesn't get enough rest he ends up getting sick. There seem to be a lot of immune related problems that run in my family.
I have thought about
taking a leave of absence from work to see if it helps me feel any better or to be able to function better overall. I only work part time and fortunately my boss let me cut back my hours from 24 hrs a week to 18-20 hrs a week. Even that is getting hard for me.
I know what you mean about
your social life. Fortunately I am married to a very supportive husband. I met him while I still had CFS and was sick and tired a lot, but I wasn't nearly as sick as I am now. Even being married, any debilitating illness can be really lonely becasue a lot of people don't understand what it is like to have such profound fatigue. It goes way beyond feeling tired. I get worried that the friends I still do have will get tired of me being so tired and not able to do much. At times I even worry about
my husband because I know this takes a toll on him. We used to be really active together. We were both runners and played in an adult recreational soccer league together. Now there are days I can barely get out of bed and walk.
This is why HealingWell has been a lifesaver for me. People here really understand what it is like to be chronically ill.
I hope your leave of absence helps.
Diagnosis: Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain
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