Hi Western, I'm glad you found this forum, but sorry that you have CFS. I understand about
the isolation because it is very hard to explain the kind of fatigue you get and how debilitating it can be. There is a really good website called "butyoudontlooksick.com". There is something called The Spoon Theory written by a woman who has Lupus, but you can apply the Spoon Theory to any debilitating disease. I printed out several copies and gave them to my close friends and family. I do worry over time if friends will get tired of me not being able to do much or not really being able to make definite plans because I never know how I will feel.
Don't worry about
being long winded - I tend to be wordy too. The CFS forum is a little slower than some of the other forums on HealingWell, but please post as much as you want. This is a great place to come to vent or if you need support, and it is also nice to support others.
Take care and you are definitely among people who understand.
Diagnosis: Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain
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