Yes, I have gotten much better. I work part-time as a massage therapist (I am self-employed, so I can set my own hours), and I am going to school full-time (online accelerated program). I had two kids while I was sick. My oldest is 17 and my youngest is 14. My husband did help out a lot, and is very understanding of this disease and my limits. I do have to pace myself, but I've learned that when I listen to my body, I heal faster and feel better. I never push myself too much. If I need a break, I take it, and maybe miss an event that is not totally necessary. I also work out, and I feel this helped condition my heart so I don't get the rapid heart rate like I used to. Amazingly enough, I feel it has also conditioned me so that I do have more stamina and energy. There are some days I'm dead tired, and I will go do a short 20 minute walk or work out with weights, and when I'm through I feel so much better.
I've been totally bedridden with this disease (for about a 3-month period.....14 years ago). So, I've seen the worst, and have come out well. I'm not saying life is perfect and I have the energy that I envy in normal people. I do have to pace myself, but I am able to lead a pretty normal life. I just watch myself and pay attention to my body, when I need to rest that's what I do.