I truly hope that one day there is a cure for many of these debilitating diseases. The bad thing about
CFS is that I feel like it's kind of gone under the radar in the medical community - I don't hear nearly as much about
it as I did in the 1980's and 90's.
When I was in remission, I was able to whatever I wanted, I just noticed that I needed to rest a little more on some days and once in a while my body would crash and I would need to spend a day or two in bed. Fortunately I was able to have both my kids while I was in remission and I got sick again not long after my second child was born. I have some days that I can't function at all and have to spend my time on the couch or in bed. It is hard to make plans because I never know for sure how I am going to feel, but I am able to go out to eat or to a movie here and there. I do work, but it's very part time and unfortunatelyI think I am going to have to quit within the next month or two - it's just getting to be too much and I think I might be healthier if I didn't have the stress of working.
I really hope that you experience remission and that this nasty disease doesn't ever return for you. You deserve a normal life where you are able to have kids and enjoy your life. Until that happens, just know there is always support here for you.
Diagnosis: Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain
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