I have posted here before about my 15 year old daughter who has signs of CFS or lyme. We did consult with a lyme dr and are waiting for tests to come back. My question to you is I read that you got sick after mono.... She was originally diagnosed with mono in january - spleen pain/enlargement but both mono tests came back negative. She was dizzie and felt exhausted. one month later her legs were stiff, she had extreme feeling of sickness, fatigue, insomnia. Then one month later her legs feel like jello, she has joint and muscle pains, cramping in her legs and lower back, huge concentration issues, light and sound sensitivity, anxiety and pain in her ribs. Always saying she feels like everything is heavy, shutting down. Does this sound like CFS to you?
She seemed to be getting better from the mono (or what we thought was mono) , then it seemed to hit her harder. She is too sick for school at this point.
We have been to a rheumatologist and a neurologist. Our Dr's are perplexed and do not think its lyme because the initial tests came back negative. Who would you recommend (speciality) for a diagnosis one way or the other?
Thanks for your help