New to the Forum but not to CFS

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New Member

Date Joined Jun 2006
Total Posts : 4
   Posted 6/28/2006 7:47 PM (GMT -6)   
:-)  Hello to all, I am new here and celebrating 10 years of CFS.  My started with a drop in my body temperature, 96.2 at one point and lots and lots of joint muscle pain, swollen lypmph nodes, sore throats, fatigue, fuzziness of brain, my allergies got worse, and I experienced abcesses in my teeth.  Several years of "there is nothing wrong with you" after just about every medical test known to man.  It was my allergist who sent me to a specialist in CFS that finally confirmed.  I sometimes ask who nailed my shoes to the floor.  At any rate, I think I have finally found a site where others can understand, as they have the same thing.  I was forced to early retirement, that has helped some as my job was getting very stressful.  But like others have mentioned, it is the isolation and lack of understanding that gets to you the most.  I try not to think of what I have lost, I focus on what I can do, but some days, like today, that is not enough.  I must be in a downswing mentally as I have been very down the past week, and it is wearing on me.  Well I have rambled on enough, I am looking forward logging on in the future and finding my CFS buddies waiting for me with some good advice or just a shoulder to lean on.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/29/2006 9:17 AM (GMT -6)   
Welcome Milly - I'm glad you found us. You seem to have a great attitude even with all you have to deal with. THe cfs forum is a little slow, but lately we've had more people coming in and a little more activity going on. I got diagnosed with cfs in 1991 then a few years later I went into remission until Dec 2003 when I got really sick again. Now on top of cfs I have some bloodwork that came back positive for lupus. I am also trying to do what you do by trying to recognize the blessings I still have. But, we are all human and being chronically ill wears on a person and I think it's normal to get down about it. I've had a hard time lately too and I'm trying to pull myself out of it.

Hang in there and know that you are among people who understand.

Take care
Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain



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New Member

Date Joined Jun 2006
Total Posts : 4
   Posted 6/29/2006 9:43 PM (GMT -6)   
Thanks for the welcome. Today was a better day, kicking myself in the butt to get up and do something. I do miss my former self, but this is who I am now. I have a family wedding this weekend, I can't wait for the "you still have that". Fun wow. As I read the posts from everyone, it is like endless chasing from doctor to doctor. I am not putting anyone down, I was there in the beginning. I don't think the cure will happen anytime soon, there really are no answers, just control the symptoms. I check the CDC website from time to time, they have a section devoted to CFS, very interesting. Later.
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