How Do You Help The Young Members?

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Veteran Member

Date Joined Feb 2006
Total Posts : 620
   Posted 7/10/2006 2:56 AM (GMT -6)   
sad  this is artpainter44 with a problem i don't know how to solve, although i guess "solve" is totally the wrong word. this is a wonderful forum and i bless everyone associated with it.
    i am having difficulties dealing with some of the feelings i'm having regarding some of the difficulties of the youngsters on the forum. i find myself having trouble accepting that some of them are so terribly ill;there's a frustration about it all. i am really trying to be supportive of people & i, in return, have received much support. this is a great bunch of people.
    but  what can you say to help a young person who will miss out on a lot of the life they should have had? "i'm sorry" doesn't seem to be nearly enough. being there for them as much as you can is all you can do, really. tell them you care  about them and what is happening to them.your heart breaks and there's nothing you can do about it but weep and let them know you care. people on this forum are brave because they face adversity every day of their lives and still they live, plan and do the best they can with the hand they were dealt. they forge ahead, some will live , some won't but it won't be for lack of trying .i believe in god ;some days it's hard to see much good in a universe where there is so much pain, & i admit i don't understand it at all most of the time.i couldn't live if i didn't believe there's a reason for everything.i have spent a large part of my own life trying to figure out what it all means...the one thing about getting older that i am so grateful for is that i finally realize i will never know , at least not on earth;i am more able to live than i was at 20. illnesses and all. some of these kids are wiser than i will ever be.bless their hearts. each of us is on his or her own journey;it would be too lonely without each would be too lonely for me now without this forum. thank you all. much love from painter.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 7/10/2006 9:38 AM (GMT -6)   
painter, it is really hard to know that people you have met here and care about have such serious health issues. I think you are already doing the most important thing by listening and caring. When you think about it, that's all any of us with chronic illnesses want - some understanding, support and compassion. We obviously can't make any of each other's problems go away, but what we can do is be there for each other. I know for me it is a huge relief to be among people who truly understand what it is like to deal with all of the struggles of a chronic illness.

At the same time it is SO important to take care of yourself too and while it's wonderful to be so compassionate, if you take on other people's problems too much it can make you even sicker. I always tell myself that if I don't take care of myself I won't be any good to anyone else.

It is obvious you care a lot about others and I am sure you have helped people more than you know just by being there and being caring and understanding.

Hang in there - I know how hard it is. I don't understand the reason for so much suffering either.

I'm glad you posted this - it's a really important topic.

Take care and I'm sending you lots of hugs and please don't let yourself get so worried and upset that you make your own health worse.
Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain



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Veteran Member

Date Joined Feb 2006
Total Posts : 620
   Posted 7/10/2006 12:27 PM (GMT -6)   
:-)  thank you, hippi, thank you. it helps that you understand...& i think i have been heading into some trouble & must remember to take some time for myself & not obsess .you have always been so kind & so supportive. i have been listening;now i'm hearing you. thanks again.hugs painter
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