Hi Rj and welcome. I'm sorry about
all of the health problems you have been having. As far as what might be going on with your symptoms and the virus, I would tend to listen to the cardiologist and the rheumatologist. It sounds like you are dealing with things in addition to CFS that need attention.
For me I think that EBV and CFS were the beginning of the current health problems I have today. I was never the same after I had mono and then several years later I was diagnosed with CFS. There were several years after my CFS diagnosis that my symptoms went into remission but then almost 3yrs ago I got sick again and now I have labs that indicate lupus.
You do have to stay on top of things with your health and continue to get any new symptoms checked out to make sure you are not developing something new.
I hope the rheumatologist will be able to help. Keep us updated and take care.
Diagnosis: Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/