CFS or something else?

I was diagnoised with CFS two years ago but had it about 6 years now. I have anxiety at times, but defintely the fatigue is bone crushing at times. I have swollen Lymph nodes all the time...when I started out I had sore throats...I had fever when I started out as well but now I'm doing good to get over 97.6. My blood pressure is extremely low.....85-48 and the aches and pains from this can be anywhere from annoying to severe at times.

This all started when a bite(I think) that turned out to create many, many, many boil-like bites all over me....That lasted two years until I got pregnant and I haven't thankfully had one since but the illness still goes on.

I tested positive for EMV and CMV also but that was after being diagnosied so I don't know if I had it before that period of time.
Everything for me came on very gradually though........mild achniess, mild fatigue, mild mood changes and then got worse as the time goes on.

Hopefully you don't have it...I really wish you don't. It's terrible and not curable and in fact a lot of doctors don't believe in it still even though so much research has been done and proven to be a true debilating ilness.

If it's anxiety, then medicine should be able to help quite a bit for that. Zoloft works really well for me. That will be the ruling out factor......if the medicine totaly controls everything that was wrong then you have your answer...

Good luck!

Hi aquarias,

How did you Lyme tests come out?  I still think your symptoms could be Lyme especially with your scary thoughts---Lyme can do that.

 

How could the doctor say right away no lyme? That's a little strange, especially since all of the symptoms you described are pretty classic lyme symptoms. Did you look into seeing an LLMD?

You can consistently test negative and still have it. Do you know which kind of test was run and at what lab? Elisa tests are the least reliable (they are virtually useless to long-term lyme patients); western blot tests are more useful, but only IGeneX lab in CA (and maybe one other lab?) test for all the bands, including those that are specific to lyme. If you had a test done by a regular doctor who did not send the blood to IGeneX, chances are the results the doctor looked at (specific "bands" showing up) aren't even the ones that are specific to lyme. You can read more about lyme, testing, etc. at www.ilads.org (International Lyme and Associated Diseases Society).
Another reason many people test negative is that lyme suppresses your immune system; the longer you have had it, the fewer antibodies your body is able to produce to fight it off. The tests look for antibodies, so it's no wonder that there are so many false negatives! You'd think the medical community would begin to address this, but no...
Anyway, that's just some more lyme info. I do think it would be worth looking into (i.e. seeing an LLMD, reading some more on I-LADS' website), but it's up to you. I hope you find some answers soon!

ok i tested positive for the monospot may 1st ever since been real tired no more sore throat wasn't to sore to begin with but i get minor ones that come and go get 1 lymph that starts to swell once in a while muscle pain and weakness sensitive to light sometimes and sometime itchy skin and also have anxiety always had it though since i was 15 lyme hiter came out negative does this sound like CFS to you guys im a 27 yr old male haven't felt normal since.

hey, you could check the Mercury toxification from amalgam fillings if you have the fillings. that could cause CFS too. and all the symtoms you have.