Hippi.... how have you been feeling?

Hey Orion, thanks for asking. I had actually been doing pretty well the last three weeks. I switched rheumatologists and found a really good one who was willing to go the next step with me for meds to treat lupus. He put me on a low dose of prednisone 3 weeks ago and decreased the dose a little each week to see the lowest dose I can do okay on. He also said to keep track of symptoms beause the ones that get better are related to lupus and the ones that don't get better would be related to CFS since prednisone doesn't do much for CFS. Well, I did really well the first 2 1/2 weeks - my pain level went down and my energy level went up and I felt like I was actually among the living again instead of the walking dead. But I'm not doing well on this next lowest dose - all the pain and fatigue are back, so I'm going to call the rheumy on Monday and see if I can bump my dosage back up again. Some of the side effects of the prednisone are no fun but for right now it's worth it to have some quality of life.

I saw on your other thread that you are going to try accupuncture soon. I have read some good articles about it helping both pain and fatigue. It will be good to hear what it is like from someone who has actually experienced it. It's something I've been curious about but I've been nervous to try it. Be sure to let us know what your experience is like.

Thanks again for asking about me.

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