sorry you are having to go through this. what are your other symptoms? i assume chronic pain is one. why do you say this is a temporary diagnosis?
i have had debiltating fatigue for the past 14 months, after having a bike accident in which i received head, back and neck injuries, which manifests much like CFS without the immuno problems. i think these types of illnesses (CFS, FM, and other autoimmune illnesses and viruses) are very difficult to understand and diagnose because it is hard to measure and see what's going on in the ways doctors are trained to do. i think somehow the medical community is going to need to approach it from a whole different direction if they ever want to get to the bottom of things. a new paradigm of understanding will have to be born that integrates energetics and quits focusing exclusively on chemisty and structure.