I really don't know much about CFS, but your symptoms do sound a lot like lyme. I think they both have many symptoms that overlap with many other things. The good thing about investigating lyme is, if you have it, you can be cured! And you'll have the mental satisfaction of knowing what's wrong. For me, I had a really hard time getting to a doctor -- just driving there terrified me, because I could barely stay awake behind the wheel. Is there a family member who could support you by taking you to a lyme doctor? Definitely do email or come over to the lyme board if you want more info. I think it would at least be worth investigating; that's just my opinion. :)