Kim, I'm sorry you have been through so much in the past 4 years. I know how frustrating it can be to feel so sick and to have no answers as to what is wrong. I have found along the way that a lot of docs like to pass these kinds of symptoms off as depression, especially if they can't figure out what is going on. I always told doctors that I wouldn't feel depressed if my health was better and if I had the energy to do the things I enjoy I wouldn't be feeling down emotionally. I see depression more as the reverse - that when you are depressed it can cause fatigue, as opposed to what you are going through which is the fatigue causing your sad feelings. I think there is a huge difference.
I wish I had some great advice for you, but CFS is so hard to diagnose. The one thing you might do, if you haven't already, is to see an infectious disease doctor - they are ones who are good at diagnosing CFS.
I hope you get some answers soon. Hang in there and ask any other questions you might have. Take care.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain;
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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