you're right about cfs falling through the cracks. until 1995/96 there was a cfs support group in moncton(closest city). now there's only a support group for female fibromyelgia patients, conducted by a psycologist who specializes in fibro; but neither the group or the psycologist will have anything to do with cfs. i could tell you doc horror stories that would make you cry. the neat thing is the doctors believe in cfs, but i'm blacklisted because i'm a drug-addict; i'm a drug addict because i spent 4.5 years on hydromorphone awaiting back surgery for 5 compacted discs. the pain clinic doc told me it would take 1-2 years to wean me off the hydro(800 mg daily) plus probably two years on methadone. 7 months later, and 3 months after my operation, i quit cold turkey. that was 4 years ago, yet last dec i passed out backwards on my woodstove, ended up in the hospital with sprung ribs, torn muscles between ribs and lung, and burns. because i'm an addict, they refused to give me anything for pain. for 16 days i slept approx 1- 2 hrs per day sitting up in a chair. i finally got my doctor to listen to me in sept., after he ignored my complaints about pain and swelling in my hand because of a dog bite all summer. i ended up on an iv for 5 weeks with a chronic bone infection, and he feels bad. so he's actually listened to me the last two times i was in. he's put me on 150 mg arthrotec daily for pain. it's helped a lot, i can walk withought agonizing pain in my lower back. in this end of the world, to get a doctor to listen to me is something to rejoice. thanks for listening.