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Chronic Fatigue Syndrome
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Posted 11/4/2006 5:24 PM (GMT -6)
I have had what I thought was chronic fatigue or just extreme stress for the last 2 years - very low energy. I would come home from work and crash and I never felt rested. I WISH I felt that way now. A few weeks ago, I began having pretty bad joint and muscle pain - mostly in my legs from the hips to the ankles. Extreme weakness and fatigue hit about a week later - like nothing I've ever experienced in my life. It's to the point that I am not able to do anything that I used to do. I cannot even stand at the Grocery store for more than 20 minutes. I am so very dizzy - my head is spinning and it's very disorienting. I'm having difficulty with word recall and I feel like I look drugged or drunk all of the time. I drank 1/2 of a beer soon after this began and I started slurring. They are running all kinds of tests trying to rule this and that out. I've even had a brain MRI! My question is this - does this come on that fast? I never had a fever or anything like that. It just hit me like a ton of bricks. I want to know what is wrong with me. I want it not to be CFS because it appears that there is no treatment for that. How did your CFS come on?
Posted 11/4/2006 5:53 PM (GMT -6)

Hi Gloryroad

Welcome to HW you will find pleanty of careing and supportive friends here.

I didn't realize I had CFS untill after I was dignosed with fibro. All I know was I didn't have the energy to do the smallest thing. We knew something was wrong because I have always been a very active person but we just didn't know what. After many many test from my dr he dx I had fibro and CFS is part of it. Which explained a lot but the dissapointment of no cure of course has given me anziety and depression.

I feel I am one of the lucky one's because I have only had a few painc attacks and they wasn't very bad.

I want to let you know you are in my prayers and I hope things get better for you soon. 

Posted 11/4/2006 5:56 PM (GMT -6)
Welcome Gloryroad.

Please look into some of my posts, and read about Adreanl Fatigue. I noticed you said you were "Extremely stressed". Stress can cause serious havoc on your adrenal glands, thyroid glands, and life itself. Check out some of the links in my signature, and my posts.

-O-
Posted 11/5/2006 2:19 AM (GMT -6)
Hey, sure sounds like deja-vue to me. that's pretty much how mine started; the half a beer and slurring part was one of the confusing things when i started getting sick. i had a fair amount of practice at beer drinking, but suddenly i couldn't drink anymore. also no energy, unrestfull sleep, loss of appetite. i had confidence in the medical proffession so it took 3 years and a 35 lb weight loss before i was taken seriously. by then i was sleeping if i wasn't at work. i've seen go in for a 12 hr shift and wake up when the dayboss would come in. i'd sleep for 12 hrs with boilers and machinery running. i was no longer a functioning human being. that was 14 years ago. i haven't worked since. i can barely function enough to live alone(i have a caregiver 25 hrs a week). somedays i barely have the strength to sit up; other days i can walk around my yard and work in my flower beds. i spend from nov-april/may housebound. and brainfog, well somedays i think i'm the world's dumbest person. when i get stressed out real bad i go into grand mal seizures. i went to bed at 1am and it's 4:08 am and i've been up for 40 minutes, after spinning in bed for a half hour or so. too much pain to sleep or even stay in bed. i have arthritis in the feet, most of my spine and the neck so it's not easy getting confortable to sleep. sleeping a few hrs a night doesn't help my stress levels. at least with this site i always have somewhere to go when i need to talk and feel understood. i really hope that you have anything else besides cfs. and if you have cfs, i'll pray to God that you(or anyone else) doesn't ever get to the point where i am. no-one should have to feel this bad. well, i hope things work out for you, and whatever you do, DON'T GIVE UP!!!!!
Posted 11/5/2006 4:29 PM (GMT -6)
THanks for the support - this is so very hard and it feels good to be able to talk to people who are having the same problems.
Posted 11/5/2006 4:35 PM (GMT -6)
Sorry you're feeling badly. For me, the fatigue part came on slowly, but the rest of the effects came on quickly. I started having dizziness spells and all the rest in a matter of days. I remember working on my car one day under the dash (so I was upside down) and I started spinning that I had to stand up, then I fell down. My memory and concentration were basically nonexistent as well.

The dizziness eventually went away after a few months, but the rest lasted. Just keep on looking until you find out what it is. It's hard when you don't know what it is and doctors begin shrugging their shoulders and/or chalking it up to depression when you know it isn't. Just keep going, and use whatever and whomever you can for support.. this is an excellent place to vent and get some help.
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