Chronic Fatigue Syndrome ---it seems to have a lot in common with Lupus

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New Member

Date Joined Nov 2006
Total Posts : 3
   Posted 11/10/2006 9:00 PM (GMT -6)   
I was told that I had cfs some time ago . I was ( and am still ) always tired . My sleep can be characterised as being unrefreshing ---even my dreams consist of my being tired and unable to move . I can't hold a job and am on permanent disability , although not because of cfs ; I was able to get disability because I was mentally depressed . The depression was caused by the cfs . Antidepressants completely cured the depression , yet I am still totally fatigued .
Recently , however , I developed annoying skin rashes on my scalp ; I also have , on my face, a recurring red rash which looks very much like the classic "butterfly rash" known to Lupus patients . This made me think that I have Lupus , although I have never been diagnosed by a doctor . I should add that I have lost my right eye due to some mysterious form of Glaucoma that my eye doctors couldn't understand or treat ; Lupus can , over time , attack any organ .
All this has made me realise that Lupus and CFS are very similar : they are both nearly impossible to diagnose definitively ; they both cause debilitating fatigue ; neither has a satisfactory treatment . And both are somewhat mysterious .
Could it be that Lupus and CFS are related to each other ? And , If they are related , wouldn't a common cure be easier to obtain if the Lupus patients and CFS patients gathered together to confront the medical community ? Also, wouldn't this be a greater enticement for the pharmaceutical companies to spend money on research ? Does anybody have anything to say about this ? Nobody , as far as I can see , ever seems to make the connection between Lupus and CFS . Am I alone ?

Regular Member

Date Joined Aug 2006
Total Posts : 177
   Posted 11/10/2006 10:00 PM (GMT -6)   
They are like couisns along with Fibro.  I also have the butterfly rash and a lot of the lupus symptoms.  The said that I have Fibro, but something else is also wrong.  They are not sure.  It could be RA or Lupus.  I am still leaning towards Lupus.  Sometimes I feel like I no more on the subject than they do. 

Regular Member

Date Joined Oct 2006
Total Posts : 193
   Posted 11/10/2006 10:13 PM (GMT -6)   
I believe that they are very related and that many people with CFIDS would probably be considered having what they call Incomplete Lupus Erythematosis (ILE.) I am no expert but have been reading an enormous amount about this because I feel my symptoms are similar to Lupus. See

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 11/11/2006 9:21 AM (GMT -6)   
I am also a huge believer that they are related. As you can see from my signature, I first had CFS and later developed lupus. I strongly believe that anyone with cfs or fibro has to carefully monitor symptoms and get regular labs done. I have read that it takes an average of 4 yrs and 3 doctors to get an accurate lupus diagnosis. FOr those of you who have developed lupus symptoms, don't let the doctors dismiss you or your symptoms. It finally took a third rheumatologist and almost being crippled as well as kidney problems for me to finally get diagnosed.

I think that CFS and/or mono makes us very succeptible to other autoimmune diseases. When my son was 6 he developed mono and never seemed to recover. What we have now found out (2yrs later) is that he has developed juvenile rheumatoid arthritis (he also has a lot of lupus symptoms).

Seablood, I am so glad you have brought this topic up because it is something I also believe and I see so many similarities between the two illnesses. Welcome to the forum. If you haven't already, you are welcome to visit the lupus forum.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Veteran Member

Date Joined May 2005
Total Posts : 2671
   Posted 11/13/2006 8:28 PM (GMT -6)   
Hi all,
Just procrastinating on doing some work, so I popped over here from the lyme board for a few moments. CFS, fibro, MS, and lupus all have similar symptoms to lyme as well. Before I was diagnosed, my main symptom was totally debilitating fatigue. I also had strange rashes, one across both my cheeks like the butterfly rash. A few different docs suggested early rheumatoid arthritis, MS, or lupus, but nothing showed up on blood tests. Lyme can be extremely hard to diagnose -- routine blood tests are very unreliable, particularly if someone has had it for a long time -- but you might want to jump over to the lyme forum and look at some of the symptoms and histories of people there. Also, a good website for more information is (Lyme Disease Association of America). A friend of mine had what they told her was CFS for 5 years, and it turned out it was lyme all along. She only figured this out when I pointed her to the right blood tests and the right doctors. Now she is much much better. I hope this helps someone.

Post Edited (alfers) : 11/14/2006 9:09:06 AM (GMT-7)

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