Thanks for asking. It's been kind of a rollercoaster, but fortunately the prednisone has allowed me to keep functioning, even on rough days - I don't know what I would do without it. I've had a lot of stressful life events lately but I think things should hopefully slow down soon. I see my rheumatologist again in December and we'll see what he says about
my course of treatment. I really wish prednisone didn't have such nasty long term side effects. Even my worst days now are not as bad as how I felt prior to being on prednisone.
It's been encouraging for me to read how you and now hopefully Tru will be getting some positive results based on your own research and hard work. I think you have helped a lot of people and have helped this forum become more active. I hope the endo you will see can offer even more help.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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