Posted 11/14/2006 7:55 PM (GMT -6)
Thanks for the info. The problem I'm having is that my adrenals don't seem to want to recover. I can't seem to go below 7.5 mg of prednisone without feeling awful. I have to say that I am doing much much better on my eating by cutting out most processed foods and I'm not taking in nearly as much sugar as I had been. Of course the holidays are rolling around so that will be a challenge.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


Posted 11/15/2006 5:12 PM (GMT -6)
Ah yes... the holidays ;)
 
I take it you've been to an Endo before.  Did they test your TSH, T3/T4 and do a ACTH?
 
That's great about the diet.  It's very hard to do when we feel like this though :(

Suffering from Adrenal Fatigue (confirmed by Saliva test)

Multivitamin
6000mg of Vitamin C daily
800mg of Vitamin E
1000mg of Vitamin B5
100mg of vitamin B6
Adrenal Extracts
DHEA (25mg) 

Posted 11/15/2006 7:02 PM (GMT -6)
I have had issues with my thyroid on and off. I have an interesting story about my thyroid. about 4 years ago I went to the doctor because I was really fatigued. My TSH was low. This was a very new doctor and she got confused thinking that low TSH meant underactive thyroid, when in reality low TSH indicates overactive thyroid (I didn't know this at the time). So, she put me on the wrong medicine (synthroid) to stimulate my thyroid. It was a real mess. After being on Synthroid for 6 weeks and my numbers were re-tested they were basically non existant. I went to an endo who ran a bunch of tests and I had to go on a med as a precautionary for a something dangerous called "thyroid storms". We were worried my thyroid was fried, but it eventually returned to normal levels on its own (TSH, T3 & T4). Every so often my TSH is borderline low when it is tested, but most of the time it is normal. The endo thought I had temporary hashimotos thyroidtis due to the changing hormones after the birth of my daughter. Part of me thinks that the stress my body went through with being on the wrong medicine pushed it over the edge and may have been a factor in my developing lupus.

I hope you end up with a really good endo who will help you get to the bottom of everything that is going on with you. The good thing is that you have done a lot of reading and research on your own so you have some knowledge going into your appointment so you can ask some good questions.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


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