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New Member

Date Joined Dec 2006
Total Posts : 1
   Posted 12/2/2006 9:05 PM (GMT -6)   
Hello. Im new here. Im 38 female. I came down sick in 93 with a viral bug. ever since then i have never been the same. I was diagnosed with FIBRO in 95. Now i have sprung the famous lupus butterfly rash,I did do blood work which will be back in a few days, Im scared to death. I can handle  FIBRO-CFS MS  but lupus i feel like im going to have a problem with. Help me understand this. Im so tired.Tina

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 12/3/2006 9:48 AM (GMT -6)   
Hi TIna and welcome. about 3 yrs ago I was in the same boat you are in now. I had been diagnosed with CFS a long time ago and eventually went into remission but 3 years ago I got sick again and had bloodwork done and some of it came up indicating lupus. I remember being terrified, but after doing some reading I felt more reassured. If you do have lupus, most people live a normal life span and there is always the hope of remission. Just try to take it one step at a time, although I know it's hard to do. On my signature there are some great lupus resources and info you can read, just click on the link on my signature.

Even if your labs don't indicate lupus now, make sure to keep track of your symptoms because it can take a while for things to show up in your bloodwork and it can be a very slow progressing disease, so just keep an eye on things and get labs done if things get worse or new symptoms develop. It took three years for me to get a diagnosis and it was a very frustrating 3 years of being very sick. Over time I had more and more labs come out positive.

You are also welcome to post on the lupus forum here. You don't have to have a definite diagnosis to post there.

Please keep us updated on what you find out and let us know if you have any other questions. Take care.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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New Member

Date Joined Nov 2006
Total Posts : 10
   Posted 12/3/2006 9:48 PM (GMT -6)   
Hi Tina,

I sorry to hear about the lupus. I to have had alot of problems besides CS & FIBRO. I had cancer the same year I was diagnosed with CFS. I also had 3 heart attacks because of the radiation treatments to treat the cancer and ended up with triple bypass.

All I can say is it's tough but you can get through it and If I can help in any way please feel free to contact me.

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