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New Member

Date Joined Nov 2006
Total Posts : 10
   Posted 12/3/2006 9:44 PM (GMT -6)   
Hello everyone,

I'm fairly new to this site, although I was diagnosed with CFS in 1996. I just didn't know the site existed, thankfully I do now. I have all the problems it seems that are listed here like everyone probably does.

One of my main concerns now is weight issues. Over the years I gain quite alot of weight being that I was so tired all the time andnot really able to exercise as I had wanted. In the past year I had lost 65 lbs. to get down to 220 lbs.. I was doing well but lately I've been putting weight back on which needless to say is tough on me both physically and mentally.

Does anyone else here have the same problem? If you have you been able to get the weight back off and how?

This is really bothering me as you can probably tell. I'm a 41 yr. old guy and want to be around for more years to come. I should probably add that besides CFS I also had cancer in 1996, which I beat. I also had 3 heart attacks due to the radiation therapy for my cancer and had triple bypass surgery as a result. As you can see the weight need to come back off for a few reasons.

I hope someone can help me out. By the way I exercise regularly now and eat a well balanced diet thanks to my doctor's nutritionist.


Regular Member

Date Joined Mar 2006
Total Posts : 423
   Posted 12/4/2006 7:56 AM (GMT -6)   

Welcome to the forums.

I fully understand the weight gain issue. I think mine is more onthe lines of "well, if I feel like crap, I'm going to eat like crap". I too had lost a lot of weight, and gained a lot of it back. It's very hard for me to exercise, or even eat right for that matter. It's great that you're back on a health diet and exercise. How hard is the exercise for you?

Also, what style of Karate do you study? I too use to study martial arts before this happened to me.

Suffering from Adrenal Fatigue (confirmed by Saliva test)

6000mg of Vitamin C daily
800mg of Vitamin E
1000mg of Vitamin B5
100mg of vitamin B6
Adrenal Extracts
DHEA (25mg) 

New Member

Date Joined Nov 2006
Total Posts : 10
   Posted 12/4/2006 10:34 AM (GMT -6)   
Hi Orion,

I fully understand your issues also. I used to feel the same way and just eat what I wanted when I wanted but with my heart condition now that's not an option.

I walk a mile for two day then a day off with my german shepard Nikita. On the day off I usually feel like I've run two marathons in a row. I feel like crap even on the days I walk but I have to do it for my heart, so it's a double edged sword.

I'm a Kenshin-Ryu Kempo Karate stylist. I actually inherited the art from the past Grandmaster. I still manage to do a little training but nothing like I was able to once.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 12/5/2006 10:22 AM (GMT -6)   
Lew, I've had weight issues too due to feeling so rotten that I can't exercise. Before I got sick I was an avid runner and ran a half marathon every fall, with the goal of running a full marathon the year I turned 40. Unfortunately I got sick a few years ago and I turn 40 this month, so there is no marathon for me right now - I can barely walk a mile let alone run or jog.

Like Orion, I am also having some problems eating healthy too. I used to be a healthfood nut and I'm trying to get some of that back. I'm also taking prednisone which autoatically makes you swell and gain weight. It's very sad that I weigh more now than I did when I was 9 months pregnant with both of my kids. I do worry about the effects of this weight on my health and since I have lupus I am at increased risk for heart problems. It's just so hard when I don't have the energy to work out. For me, if I can work out then I tend to eat healthier.

At least we know we aren't alone on this and heopfully we can support and encourage each other. I have been taking short walks with my dog, which leave me exhausted.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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New Member

Date Joined Nov 2006
Total Posts : 10
   Posted 12/9/2006 11:48 AM (GMT -6)   
It seems I'm not alone in this I see. I have been trying to eat alot better as well. I am very paranoid about what I eat these days especially with the heart problems. I just seem to gain sometimes no matter what I eat, it's a royal pain in the you no what.

Hippimom2 I also was a runner at one point much like you and I have been a martial artist for 36 years so it's tough. I walk my dog every other day, it's took me along time to build up to a mile. I walked yesterday and today I feel like death warm over. I suffer the day after a walk but it's what I have to do. I also run fevers around 101 to 103 average everyday which I'm sure doesn;t help with the weight problem. To be honest if it wasn't for my wife I would probably eat what I want and ballon up to 300 lbs. It would be extremely bad for me but at least I would have a reason for the weight game.

As it is I get yelled at by my cardiologist when I see him and I gain any weight. No matter what I tell him or have him read he doesn't understand Chronic Fatigue.

I guess we can all meet here and support and encourage each other.

Regular Member

Date Joined Jul 2006
Total Posts : 214
   Posted 12/9/2006 2:35 PM (GMT -6)   
I have chronic fatigue and it's hard to exercise because I am so tired. I have found something that works for me. Everyone has a favorite CD. Throw in a CD and dance around the house. I know it sounds stupid, but it's a really good work out. I do it while my husband is at home because I would feel really stupid having someone watch me. The music helps me feel motivated and it's hard to get started at first, but once I get into the music and start singing along and dancing around, it was so fun, I didn't want to stop! I am a terrible singer and dancer, but it's great exercise. Much more fun than going to the gym and going a work out tape at home.

New Member

Date Joined Nov 2006
Total Posts : 10
   Posted 12/13/2006 6:23 AM (GMT -6)   
I like the CD idea. I'm sure my dog would object though as my singing can probably make glass shatter. I might try it though as nothing else seem's to work. Thanks for the info.


New Member

Date Joined Nov 2006
Total Posts : 10
   Posted 12/18/2006 8:52 PM (GMT -6)   
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