singlemamma, my understanding is that diagnosis is done by process of eimination as well as by looking at symptoms. First a lot of bloodwork is usually done to rule out other illnesses because CFS symptoms are present in a lot of diseases. When all other illnesses are ruled out and your symptoms match CFS, then sometimes a diagnosis is given. I have read that some infectious diseases docs have been good at diagnosing CFS. There are some people here seeing endochronologists too to make sure their endochrine system is working okay, so that is also worth a try.
I remember seeing you on the lupus forum too and I'm guessing the docs are still trying to determine what you have. I do know how frustrating the whole process is and it can go on for a long time. When I first got lupus symptoms it took almost 3 years for me to get a diagnosis. Just don't give up. I might do some more reading later about
diagnostic criteria for CFS, if I find anything new, I'll post it.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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