Narcolepsy/Ideopathic Hypersomnia

Anyone dx'd with either of these conditions?  I'm usually over moderating the Crohn's & Depression forums, but I was presented with the possibility of having one of these conditions yesterday.  I'm going in for a multiple sleep latency test late in February after having the sleep study Halloween night which ruled out sleep apnea (for now.)

Any thoughts or suggestions?

---

Jon

 

"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret."
-- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet

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Hi Jon, welcome to the CFS forum. I read a little bit about idiopathic hypersomnia and it sounds a lot like how people with CFS feel - still feeling very tired after sleeping. I'm glad you are having further tests done which will hopefully help the docs figure out why you are not feeling refreshed. I wish I had more info to give you. Let us know if you have any other questions. Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/

Jon, I hope the test went well. Let us know what you find out. Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums