Narcolepsy/Ideopathic Hypersomnia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3447
 		   Posted 12/29/2006 11:29 AM (GMT -6)   
Anyone dx'd with either of these conditions?  I'm usually over moderating the Crohn's & Depression forums, but I was presented with the possibility of having one of these conditions yesterday.  I'm going in for a multiple sleep latency test late in February after having the sleep study Halloween night which ruled out sleep apnea (for now.)
 
Any thoughts or suggestions?
Jon
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret."
-- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Back to Top

bee33
Regular Member


Date Joined Nov 2006
Total Posts : 51
 		   Posted 12/29/2006 6:32 PM (GMT -6)   
My understanding of the term "ideopathic hypersomnia" is that it means "you feel very sleepy (or don't get enough sleep) but we don't know why." It's not a very useful diagnosis, as far as I understand. And if you had narcolepsy wouldn't you know it?
Back to Top

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
 		   Posted 12/31/2006 8:48 PM (GMT -6)   
Hi Jon, welcome to the CFS forum. I read a little bit about idiopathic hypersomnia and it sounds a lot like how people with CFS feel - still feeling very tired after sleeping. I'm glad you are having further tests done which will hopefully help the docs figure out why you are not feeling refreshed.

I wish I had more info to give you. Let us know if you have any other questions.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


Back to Top

FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3447
 		   Posted 2/26/2007 12:21 PM (GMT -6)   
Well, tonight's the night. I go in for the overnight then have the MSLT tomorrow. Finally, a test I can look forward to--taking a nap every two hours. Rest well everyone...
Jon,  Co-moderator for Crohn's Disease and Depression forums
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret." -- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet 
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Back to Top

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
 		   Posted 2/27/2007 10:01 AM (GMT -6)   
Jon, I hope the test went well. Let us know what you find out.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Back to Top
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 5:44 PM (GMT -6)
There are a total of 3,006,617 posts in 329,364 threads.
View Active Threads


Who's Online
This forum has 161840 registered members. Please welcome our newest member, 6catlady.
275 Guest(s), 6 Registered Member(s) are currently online.  Details
paul_t, oceanfisher58, Tredye, Chutz, garyi, AUniqueName18