Hi Jon, welcome to the CFS forum. I read a little bit about
idiopathic hypersomnia and it sounds a lot like how people with CFS feel - still feeling very tired after sleeping. I'm glad you are having further tests done which will hopefully help the docs figure out why you are not feeling refreshed.
I wish I had more info to give you. Let us know if you have any other questions.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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