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Narcolepsy/Ideopathic Hypersomnia

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Chronic Fatigue Syndrome
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Posted 12/29/2006 10:29 AM (GMT -6)
Anyone dx'd with either of these conditions?  I'm usually over moderating the Crohn's & Depression forums, but I was presented with the possibility of having one of these conditions yesterday.  I'm going in for a multiple sleep latency test late in February after having the sleep study Halloween night which ruled out sleep apnea (for now.)

Any thoughts or suggestions?

Posted 12/29/2006 5:32 PM (GMT -6)
My understanding of the term "ideopathic hypersomnia" is that it means "you feel very sleepy (or don't get enough sleep) but we don't know why." It's not a very useful diagnosis, as far as I understand. And if you had narcolepsy wouldn't you know it?
Posted 12/31/2006 7:48 PM (GMT -6)
Hi Jon, welcome to the CFS forum. I read a little bit about idiopathic hypersomnia and it sounds a lot like how people with CFS feel - still feeling very tired after sleeping. I'm glad you are having further tests done which will hopefully help the docs figure out why you are not feeling refreshed. I wish I had more info to give you. Let us know if you have any other questions. Take care
Posted 2/26/2007 11:21 AM (GMT -6)
Well, tonight's the night. I go in for the overnight then have the MSLT tomorrow. Finally, a test I can look forward to--taking a nap every two hours. Rest well everyone...
Posted 2/27/2007 9:01 AM (GMT -6)
Jon, I hope the test went well. Let us know what you find out.
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