thank you all for your messages, it is nice to just know that someone else knows what its like to feel like this.
Firstly Mark, do you think i will still have to pay for the doc you recommended if my GP does a refferal? were you referred or did you just book a private appointment? I've got the names of 3 other consultants that have a special interest in CFS but i havn't found one that is a specialist despit searching the net for weeks!
SleepyKat, what is Mono? and what are DHEA's? this is all new stuff to me, feel like i've entered a parrallel universe!
SleepyKat also mentions 'too many other symptoms to mention' thats the other thing i have loads of annoying minor symptoms that on their own i wouldnt bother the doc with or even mention to anyone at all but i cant help wondering how many things are related to the CFS i possibly have and which things are just normal that other people have too, sounds like an odd statement but having only ever been me i dont know what things nromal people experience so i dont know if these minor things are something or not!
the other question i wanted to ask is does anyone else have very specific timings when they 'crash'? i call it my 'slump' when it happens and i can pretty much time it, i am ok-ish for the first few hours of the day then i slump at about 11.30 in the morning, i feel terrible for an hour or so, then i slump again about 3pm really badly, then come round after a hour or 2, then slump again about 7pm and thats me for the day then, i cant do anything after 7pm, i can manage maybe an hour on the pc then i go to bed. because of the timings i wondered if it was food related but as i feel no signs of IBS and have no tummy troubles really i guess thats unlikely.
anyway, thats enough ramblings from me for now, will look forward to hearing more of your stories and any similarities with my symptoms, sarah :o)