First question is are any of you here from the UK and if so do any of you have the name of a CFS specialist?
Here's my story and questions..
I've been tired most of my adult life but have felt much more so in the past year and feel i'm getting worse week by week, the tiredness is bad but there's also a feeling of pressure around my eyes and at the front of my head that makes me feel like i'm gonna pass out or not be able to see (neither of these things happen, it just feels that way). however, my body feels quite normal, no real aches or pains that are too out of the ordinary and my body doesnt feel weak either really, i dont have the sore throat thing that's mentioned in all the diagnostic criterias nor do i have the sore glands etc. so its mainly the tiredness and this feeling in my eyes/head that are making me feel so bad, kind of slightly disorientated or as if i may fall over at any moment. I also dont notice any significant change in how i feel if i get active, if i do anything strenuous i'm tired, if i don't do it i'm tired, its not any worse for being active (although obviosuly i dont have it in me to do anything too active but for the time being i'm still working and just about managing normal life) So i guess firstly i'm wondering if anyone else has similar symptoms?i know each case is totally different but as mine doesnt seem to fit with the classic criteria it would be useful to hear if anyone else has felt the same way as i describe?
I've had my first 2 batches of blood tests done and all came up normal except low levels of Folic acid within my red cells, i've been put on supplements of folic acid and magnesium for a few months to see how i go but my doc kind of implied that if it doesnt help he doesnt know what to do next and said he'd do a referral to a specialist if i can find one. After reading all your posts i guess i'm years away from getting a diagnosis if i'm only just doing the first lot of tests?
I'm worried, scared and confused by whats going on, i feel like i'm barely holding onto normal life, i have a 3 year old son and i'm bringing him up on my own and i'm just so scared in case i cant look after him at any point.
well, there we go, sorry about long post, any advice, comments, similar stories, tips etc will help greatly. :o)