Please remember it is not your fault you are sick. It is such a shame that people do not realize the struggles chronically ill people go through to continue leading a normal life and trying to cope & thrive despite our physical problems.
Your family might think you were a hero if they spent an hour or two in your body!!!
Have you ever been tested for tick-borne illnesses, uchurley? Lyme Disease is a multi-systemic illness that could be the cause of any of the problems you described. Current blood tests for Lyme are not reliable. Diagnosis is usually made on the basis of symptoms/possible exposure to ticks.
Some people do not remember being bitten by a tick and never see a bulls-eye rash. Symptoms can lie dormant for many years (even from childhood) and be triggered by a stressful life event. Also it is possible to go into remission and then have symptoms return again later if not treated properly.
One of the reasons I bring this up is that the use of steroids can disseminate Lyme through the body very quickly and cause a flare up of symtpoms.
The 'good' thing about
have Lyme Disease is that with proper treatment, most Lyme patients do recover. I only want to suggest that this is an area you could do some research on and try to at least rule out the possibility of Lyme Disease.
I wish you good luck on your search and hopefully journey back to health ...