Orion?

Orion, I was just checking in to see how the provigil was working.  I have heard mixed reviews about it.  I hope it's helping some.  The new doctor sounds pretty thorough and it sounds like he's willing to help.  Does he just want to try some other things before he tries Cortef? Give us an update when you get a chance. Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums

That is interesting about the testosterone - I have no idea what it means but I would think it would mean something isn't right. It will be interesting to see what happens with your thyroid. It's always interesting when you can take time and look at your own labs. I know people who request a copy of their labs everytime they have them done - I'm tempted to do that just so I can take time to look over them and also so I'll have a copy if I ever see a new doc. I think there is something you can ask them to write on your lab slip to get a copy sent to you. It's too bad the provigil isn't helping and it's making you feel sick. At least you don't have to wait too long for your next appointment and you can go over the labs with the endo. Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums

I'm sorry about the thread being locked too, kinda sucks. Seems like you almost need to moderate your own thread to try to keep it open in case it gets too popular.

Low testosterone levels can effect a person much the same way low adrenals can. I had my testerone checked already and they appeared normal, so it wasn't my problem, but definitely have it checked out.

Hi Orion!

I was thinking about you and I decided to long on. I guess I missed what happened, because you said that your thread is locked. :(

Can you tell me what happened?

Also, I've read that low thyroid function can have something to do with low testosterone levels too. For example, some men start loosing their body hair, because of low thyroid function affect on testosterone levels. When one hormone level goes too high another lowers....or when one hormone levels lowers another hormone makes up for that hormone and produce more of it's own. It's seems that thyroid function has the ability to throw anything off balance...and since no person is exactly the same we aren't affected the same, because some people have no affects even though their levels are off balance.

Some women with my same hormone level results have endometriosis...I don't. My obvious affects was/is my skin, hair, and mood.

Also, less than a year ago I didn't know that the thyroid produced hormones, and that it was important to the endo system. When it's off something else is off...or almost everything is off. Some women that was told and believed that that had Polycystic Ovary Syndrome (PCOS)only had low thyroid function, and after treatment they were able to get pregnant.

I guess if a doc would have looked into my symptoms more they would have said that I have PCOS too.

Why do you feel the they need to test your testosterone level again?

Orion, I believe that Armour Thyroid and my supplements is all that I need. I'm glad that I stopped taking hydrocortisone. Those signs that I had was telling me that my body didn't need that much anymore. I don't even sleep during the day anymore...and when I stopped taking it I wasn't sleeping during the day either, but I do burn out at night when I'm supposed to. I don't have to force myself to sleep at night. LOL That's ok...it just means that I'm getting back on track.

Orion, I think that you can benefit from using Wild Yam Cream to help balance your hormones while docs figure things out. I'm loving the stuff. It's better than ProGest, because it's light not heavy...so it going in to my skin much quiker. I'm using it on my face and wrist right now...the want you switch up. I will use it for the rest of my life....why not.

Men an women use it.www.americasnutrition.com/wilyamprogcr.html

You can read about it here vitanetonline.com/forums/1/Thread/454#Message678

Good luck!

---

I have adrenal fatique(or one of the many names that is called), abnormal hormone levels and hypothyroidism(tissue resistance to thyroid hormones).

Meds: Armour Thyroid, Wild Yam Progesterone Cream, and lots of supplements in addition to my multi-vitamins.

Post Edited (Tru) : 1/19/2007 6:23:20 PM (GMT-7)

Well, I had my ACTH Stim test done today.  Man... that sucked.  Getting pricked twice for blood isn't fun.

They took my blood, then gave me a shot of Cortizone and told me to wait in the lobby.  within 5 minutes, I noticed that my neck pain went away (ofcourse, cortizone is an anti-inflamitory), but I also noticed that I was feeling a little bit better.  15 minutes after that, I crashed... I mean like a sugar crash.  They then took me back and drew my blood again.  I'll have the results on Friday (calling in). 

I also did my neck X-ray this weekend, and tomorrow, I'm going back to the lab to have more blood work done for this Endo, except this one is all fasting. 

She said, if this ACTH stim test, along with the blood work doesn't show anything, then it's not Endocrine .

---

Orion, I'm glad the doc is being so thorough and I hope something turns up that explains your symptoms. I hope your trip to Florida is relaxing. I look forward to hearing from you on Sunday. Take care and have a great trip. Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums

Orion, did you ever have your T3 tested? When the say that adrenal fatigue and low thyroid go together and that low thyroid function is overlooked by doctors they are talking about the T3 level. Docs test T4 and TSH, but they never test T3 unless you tell them to.

---

I have adrenal fatique(or one of the many names that is called), abnormal hormone levels and hypothyroidism(tissue resistance to thyroid hormones).

Meds: Armour Thyroid, Wild Yam Progesterone Cream, and lots of supplements in addition to my multi-vitamins.

Post Edited (Tru) : 1/24/2007 1:43:25 PM (GMT-7)

Any news on your labs yet Orion? Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums