Posted 1/19/2007 9:57 AM (GMT -6)
Well, it's a HIPPA agreement, so by law they have to give the results to you.  Either by fax, or by mail.  I've collected all my results from my doctors over this time. 

 

Posted 1/19/2007 11:52 AM (GMT -6)
I'm sorry about the thread being locked too, kinda sucks. Seems like you almost need to moderate your own thread to try to keep it open in case it gets too popular.

Low testosterone levels can effect a person much the same way low adrenals can. I had my testerone checked already and they appeared normal, so it wasn't my problem, but definitely have it checked out.
Posted 1/19/2007 12:42 PM (GMT -6)
Hey Spaker!
 
Well, we'll see what my other Endo thinks about this test.  It's weird, I don't have the obvious signs of low testosterone (facial hair and drive) but the fatigue is a symptoms...   I hope this one does a little more extensive testing.

 

Posted 1/19/2007 4:04 PM (GMT -6)
Hi Orion!

I was thinking about you and I decided to long on. I guess I missed what happened, because you said that your thread is locked. :(

Can you tell me what happened?

Also, I've read that low thyroid function can have something to do with low testosterone levels too. For example, some men start loosing their body hair, because of low thyroid function affect on testosterone levels. When one hormone level goes too high another lowers....or when one hormone levels lowers another hormone makes up for that hormone and produce more of it's own. It's seems that thyroid function has the ability to throw anything off balance...and since no person is exactly the same we aren't affected the same, because some people have no affects even though their levels are off balance.

Some women with my same hormone level results have endometriosis...I don't. My obvious affects was/is my skin, hair, and mood.

Also, less than a year ago I didn't know that the thyroid produced hormones, and that it was important to the endo system. When it's off something else is off...or almost everything is off. Some women that was told and believed that that had Polycystic Ovary Syndrome (PCOS)only had low thyroid function, and after treatment they were able to get pregnant.

I guess if a doc would have looked into my symptoms more they would have said that I have PCOS too.

Why do you feel the they need to test your testosterone level again?

Orion, I believe that Armour Thyroid and my supplements is all that I need. I'm glad that I stopped taking hydrocortisone. Those signs that I had was telling me that my body didn't need that much anymore. I don't even sleep during the day anymore...and when I stopped taking it I wasn't sleeping during the day either, but I do burn out at night when I'm supposed to. I don't have to force myself to sleep at night. LOL That's ok...it just means that I'm getting back on track.

Orion, I think that you can benefit from using Wild Yam Cream to help balance your hormones while docs figure things out. I'm loving the stuff. It's better than ProGest, because it's light not heavy...so it going in to my skin much quiker. I'm using it on my face and wrist right now...the want you switch up. I will use it for the rest of my life....why not.

Men an women use it.www.americasnutrition.com/wilyamprogcr.html

You can read about it here vitanetonline.com/forums/1/Thread/454#Message678

Good luck!

I have adrenal fatique(or one of the many names that is called), abnormal hormone levels and hypothyroidism(tissue resistance to thyroid hormones).

Meds: Armour Thyroid, Wild Yam Progesterone Cream, and lots of supplements in addition to my multi-vitamins.

Post Edited (Tru) : 1/19/2007 6:23:20 PM (GMT-7)

Posted 1/22/2007 8:40 AM (GMT -6)
Well, I got the rest of my results from my first Endo today.  He did test my Thryoid, but only my T4 and TSH. 
 
The T4 was 1.28 and the Thyroid was 1.360.  I'm not sure what these mean, but I'll have my second Endo opinion today.  I'll report back later on her finding and anything she wants to run.

Edit :  According to my new Endo, these results look to be in range, but shes testing them again in the morning and with a fast.


 

Post Edited (Orion82698) : 1/23/2007 2:04:27 PM (GMT-7)

Posted 1/22/2007 4:30 PM (GMT -6)
Well, I had my ACTH Stim test done today.  Man... that sucked.  Getting pricked twice for blood isn't fun.
 
They took my blood, then gave me a shot of Cortizone and told me to wait in the lobby.  within 5 minutes, I noticed that my neck pain went away (ofcourse, cortizone is an anti-inflamitory), but I also noticed that I was feeling a little bit better.  15 minutes after that, I crashed... I mean like a sugar crash.  They then took me back and drew my blood again.  I'll have the results on Friday (calling in). 
 
I also did my neck X-ray this weekend, and tomorrow, I'm going back to the lab to have more blood work done for this Endo, except this one is all fasting. 
 
She said, if this ACTH stim test, along with the blood work doesn't show anything, then it's not Endocrine .

 

Posted 1/23/2007 4:04 PM (GMT -6)

Well, I had my blood drawn again this morning.  My new Endo is testing everything possible, including my testosterone again because it's possible this could be the cause, since it's so low.  I fasted this time for this blood draw.  They're testing the thyroid and the pituitary as well as looking into the hypothalamus. 

I should hopefully have all the results by Friday via phone ( as well as the results from my ACTH Stim test), however I won't be able to post them on here because I'll be in Florida visiting my Grandparents, so I'll write back on Sunday evening.  I'm really looking forwards to this, because this was the time last year that I felt great again.  I doubt this will happen again this year, but it's nice to think so. 


 

Posted 1/23/2007 6:18 PM (GMT -6)
Orion, I'm glad the doc is being so thorough and I hope something turns up that explains your symptoms. I hope your trip to Florida is relaxing. I look forward to hearing from you on Sunday. Take care and have a great trip.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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Posted 1/23/2007 9:49 PM (GMT -6)
Thanks HM2!!!!

 

Posted 1/24/2007 3:40 PM (GMT -6)
Orion, did you ever have your T3 tested? When the say that adrenal fatigue and low thyroid go together and that low thyroid function is overlooked by doctors they are talking about the T3 level. Docs test T4 and TSH, but they never test T3 unless you tell them to.

I have adrenal fatique(or one of the many names that is called), abnormal hormone levels and hypothyroidism(tissue resistance to thyroid hormones).

Meds: Armour Thyroid, Wild Yam Progesterone Cream, and lots of supplements in addition to my multi-vitamins.

Post Edited (Tru) : 1/24/2007 1:43:25 PM (GMT-7)

Posted 1/24/2007 5:34 PM (GMT -6)
No, and it's not being tested on this one either.  I'm not sure why, but it's not. 
 
I'm almost starting to think that it has nothing to do with my adrenals or thyroid.  I'm not sure what can be causing this.  I know my testosterone is definitely low... however I won't know for sure on anything until I call on Friday.

 

Posted 1/29/2007 11:39 AM (GMT -6)
Any news on your labs yet Orion?
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 1/29/2007 4:55 PM (GMT -6)
Hey HM2.
 
Yeah... and once again everything came back in range.  I'm not sure what else to do at this point.  I'm going to just have to wait and see what my PCP wants to try next.  Other than that...  I guess this is going to be my life.

 

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