I am sorry I didn't see your post earlier. I don't have the answers about God. I'm not a believer myself and never have been.
I wish I had the answer as to how to go on. For me, somedays it is minutes at a time, until the day is over. I too am in diagnosis limboland, but for me it isn't CFS but whether or not my cancer is back, or it is MS or ???
Regardless of which conditions we are dealing with, the pain and frustration is basically the same. Added to yours is the fear for your wife's health as well. I was diagnosed with stage 3 breast cancer with metastases to the lymph nodes 12/29/05. I started chemo in January, had surgery in July, finished radiation in November, and hopefully I am still cancer free. I am currently undergoing scans to be sure.
Breast cancer is no walk in the park, but you can get through it with your wife. The worst part is the waiting and wondering. Once you have the diagnosis, you begin to look at the treatment options and feel in control again as you decide which options are right for you. The same can work for your symptoms.
Most days now I am unable to go out, the tremors, weakness and dizziness make it difficult to plan. So on my last good day, I stocked up on supplies, for the bad days. Now on the days I can't go out, I can still make hats for chemo patients, or work on next year's Christmas presents, or write....
What do you enjoy doing that you can adapt to do now with your current limitations? Perhaps reading.....or finally beating that video game you felt guilty playing when you were 100%.
I wish I knew how to give you hope. For me, it is learning new ways to do the old things, so I have some sense of familiarity with my life. I don't know your insurance situation, but is it possible to see a different doctor, who may have different ideas as to which direction to take in testing?
I just wanted to let you know that you have many "faceless friends" all around the world who DO have hope for you and believe in you. Perhaps we need to have that hope and belief in you to carry you until you find it again in yourself.
Wishing you and your wife the very best,
P.S. If your wife has questions or needs to vent, my email is available in my profile and I would be more than happy to correspond with either or both of you.
Though we live in a world where anger and hatefulness seem to be the norm, we CAN make a difference, one person at a time.
Full time Chronic Pain and Co-Moderator of the Chronic Pain Forum :)
Never lose faith in the kindness and love of others, you never know when you will receive lemons too :)