EBV Blood Tests

Hi all,

Kristie, I have both lupus and CFS and unfortunately both illnesses can be very difficult to diagnose. Lupus is diagnosed on a combination of labs and symptoms while CFS seems mainly to be diagnosed by process of elimination. With your EBV high, does the doctor think you have mono right now? If the labs remain high over time, there is something I have heard of called chronic mono/ebv. I met a teenager who had this and said his doctor was just finding out info about chronic ebv. My understanding is that it leaves you continuously fatigued. I'm not sure about treatment. It's definitley worth talking to your doctor about. I'm thinking it would be helpful to have the labs run again after a while and see if the numbers change at all.

I do know how frustrating diagnosis limbo is - I've been there several times. It took three years for my lupus to get diagnosed and sadly it takes many others even longer to get diagnosed.

I wish someone had more answers for you, but the ebv is worth looking into. A lot of people who have cfs have had ebv. Take care and let us know if you have any other questions.

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In May, I was so tired that my doctor ordered a mono test.  My EBV was 2525.  It indicatd an active acute infection.  This last fall my doctor suggested fibro.  But the more I investigate and get on these forums I am thinking Chronic fatigue.  My main symptom is fatigue, I take a nap every day after teaching 2nd graders.  I also have occasional sore throat and swollen lymph glands in neck.  In December I got strep throat.  I think my immune system is wiped out too.  Anyone like this?  I know I am sick, but I can't not work and my family is not that sympathetic.