I had never heard of this befire, but it sounds like it would be a really useful tool. I would think for disability it would be helpful to have a specialist rate you on this scale.
I have heard that it can be hard to find a specialist for CFS. Some people have gone to infectious disease docs, some go to internal medicine docs and others have gone to endochronologists, but I think the endo's just rule out any thyroid or endochrine issues. I was diagnosed by an internal medicine doc, but it wasn't a great experience and he never had me come in for any follow up, so I was left trying to sort things out for myself.
I'm glad you found this scale, it might end up helping some people who are trying to get disability.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/
Co-Moderator: Lupus and CFS Forums