MENIERES DISEASE

ti-bebechat

New Member

Joined : Mar 2007

Posts : 5

Posted 3/24/2007 12:29 PM (GMT -6)

Hello l am new here. l would like to know where l can change my font size. If poossible l find my text very small.

l have Menieres disease and l find it really tough. The vertigo, nausea, ringing in the ear, headaches. Does anyone here have it or know someone that has or had it. l would love to share about this since frankly l feel alone.

ruggedtoast

Regular Member

Joined : Apr 2006

Posts : 44

Posted 4/1/2007 4:38 PM (GMT -6)

You can change the size of text that you view by going to your browsers menu at the top of the screen, in firefox its View - Text Size - and then you can make it larger or smaller there. Prolly much the same in IE. Not sure about Menieres sorry but feel free to post theres always people wholl listen.

ti-bebechat

New Member

Joined : Mar 2007

Posts : 5

Posted 4/2/2007 12:36 PM (GMT -6)

Thanks so for the info ruggedtoast,nice of you to reply.

ruggedtoast

Regular Member

Joined : Apr 2006

Posts : 44

Posted 4/3/2007 4:22 PM (GMT -6)

No worries. This part of the site is actually pretty quiet. I think everyones too tired to post. Those fibromyalgics are full of beans though, not sure what would best fit your symptoms, possibly them.

ti-bebechat

New Member

Joined : Mar 2007

Posts : 5

Posted 4/4/2007 10:59 AM (GMT -6)

Hi again, l got good news yesterday. l had 3 biopsies at the beginning of March for Cancer and well with this Meniere thing l found the wait very long. Cancer free, yes!! Now l can concentrate on trying to go back to work. My job is no longer available but l will start looking around. Have a great day.

ruggedtoast

Regular Member

Joined : Apr 2006

Posts : 44

Posted 4/4/2007 12:07 PM (GMT -6)

Im glad that youre looking at getting back to normality. Not having cancer is definitely a good thing!

pasara

Regular Member

Joined : Apr 2006

Posts : 206

Posted 4/4/2007 2:15 PM (GMT -6)

Hi ti-bebechat and welcome. I'm sorry you are dealing with meniere's. I suffered from a brain injury a little under 2 years ago and with it came horrible vertigo, so when I say I know how you feel, I know how you feel. It would be like being on a tilt-a-whirl. I would get so dizzy I'd fall out of bed. It was the worst feeling in the world. Fortunately mine settled down after about a year, and now my vertigo is much more mild in comparison, but still affects my ability to read, the positions that I sleep or lie in, and constant nausea and malaise. Are you on a special diet? I have heard that this can help with meniere's, though to be honest I don't know a lot about it. Now I take meclizine now as needed, especially to help upset stomach. It did not help with major attacks though, so I am not sure if it wil help you or is appropriate for meniere's. l also know that when I am congested, it can make things worse. Does meniere's cause fatigue? I noticed that listed on the poll in your post. I'm glad to see you found us, and always love to see a new face, I wish we could be more helpful to you.

p.s. I emailed a resource to you that you might find helpfu.

pasara
co-moderator CFS forum
Post Edited (pasara) : 4/4/2007 1:20:47 PM (GMT-6)

senaid

Regular Member

Joined : Apr 2007

Posts : 67

Posted 4/23/2007 7:03 PM (GMT -6)

Hi there! I just ran across your post as I was looking for information for my brother. He is 42 yrs old. Diagnosed with menieres about a year ago. He gets so sick he throws up. He's looking into surgery. He tried acupuncture (didn't help).

He decreased his sodium to almost nothing. It's definitely worse with high sodium foods.

What have you tried that helps?

Diagnosed with severe ulcerative proctitis - 2003.

Remission until late 2006, just starting to see improvement due to the following:

Doing acupuncture.

I take Immunplex (multivitamin), Vit E, Fish Oil, Probiotic Eleven, Slippery Elm. Hydrocortisone

Just went in for allergy testing... allergic to cow's milk and shellfish (no outward symptoms of this at all). I'm going to stop cow's milk for 1 month and see if my proctitis goes away. (I usually don't eat shellfish)

ti-bebechat

New Member

Joined : Mar 2007

Posts : 5

Posted 4/24/2007 1:52 PM (GMT -6)

Hi there Senaid,

Wow too bad for your brother, l tried cutting down on salt and took a lot of Serc. Didn't help, l hate the always conjested blocked ear thing. l had surgery to relieve prssure on my Eustacian tube but it did not work either. l heard that medication such as Ativan can help a little but ummm l am really thinking about this as l am afraid to develop a dependance on this type of med. l have purchased a walking stick to help me when l leave the house. l gave up driving which really sucks

funny thing l am also allergic to seafood and have a lactose intolerance problem. Good luck to you and your brother, l think only time takes care of what we have.

Kiitty

New Member

Joined : Apr 2007

Posts : 1

Posted 4/27/2007 4:55 AM (GMT -6)

Hi there ti,
I have been busy searching the internet for information and came across your post.
If you have menieres disease then the best forum you can go to is www.menieres.org/forum/
It has a huge huge wealth of information and people who have had the condition for years. You may have already found it in your search anyway but I just wanted to share it with you.
Good luck
Kitty

Alcie

Veteran Member

Joined : Oct 2009

Posts : 5032

Posted 4/22/2015 7:48 PM (GMT -6)

Thanks, Kitty, and welcome to the forum. If you have anything you would like to ask or just talk about, please start your own thread - Post New Topic. This thread is kind of dead. I know a lot of members suffer from Meniere's.

I looked into the forum you recommended. Thanks.

I'm trying to figure out if I have a sinus infection that's gone to my ears. I've got another drippy nose going on and just started pain in the ear. I have chronic sinus infection.

I'm also waking up with mild nausea that gets worse if I try to eat. It gets so bad I need to take Zofran. I think I'll ask about getting some more testing.

Why do docs just say "You have Meniere's" and send us packing? It seems like there ought to be a whole battery of tests to see if there is something that will reduce the misery.

magoo2

Veteran Member

Joined : Mar 2015

Posts : 1323

Posted 4/23/2015 7:44 PM (GMT -6)

I saw a video the conductor of the boston philharmontic Ben Zander is on you tube talking about his experience with Meniere's disease and how he treated and cured it. You might find it interesting-frankly if I had Meniere's disease I would call him! I do not know him-I know the clinic he consulted
Best of luck

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